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TSRHC Hand Disorder Patient, Charlsie Serves as Ambassador

When someone is facing a serious medical condition, attitude is everything.

Charlsie, an intelligent and engaging 12-year old with an inquisitive smile, not only exemplifies how a positive attitude can help one transcend a physical challenge, she’s a powerful testament to how sharing a personal story helps others.

As a TSRHC ambassador, Charlsie shares how her treatment for symbrachydactyly, a congenital condition marked by missing bones in the fingers and hands, has affected her life at several public events, corporate gatherings and charity outings. The youngster’s speaking schedule, to look at it on paper, rivals that of a corporate executive.

Charlsie Doan

A Little Background on Charlsie

Charlsie, who was born without a right hand, began her journey at TSRHC when she was six months old. Not having a hand might be a situation that would get most children down, but not Charlsie:  she’s a violinist, she enjoys sports, and has an active social life. She was treated at TSHRC’s world-renowned prosthetics department where, according to her mother Kelly, she became great friends with the staff.

Symbrachydactyly is an extraordinarily rare condition that affects about one in every 30,000 births. Its root causes are unknown, though current research indicates that it may be caused by an interruption of the blood supply to the affected limb prior to birth. Treating symbrachydactyly includes using adaptive prosthetics that enable a person to participate in daily life. The prognosis for a person with the condition, as long as they have proper supports, is excellent.

What She’s Doing Now…

Most recently, Charlsie represented the TSRHC prosthetics team at a presentation to the Crystal Charity Ball Selection Committee. The ball is an event that benefits children’s charities throughout the Dallas community.

She’s also a regular at the KidSwing Golf Tournament, one of the hospital’s largest fundraisers. Charlsie also serves on the KidSwing Junior Committee.

For Charlsie, and so many other children facing medical complications or life-threatening illnesses, TSRHC is the place that makes typical childhood activities like violin lessons possible. Her willingness to share her experiences is a powerful example to other children undergoing treatment that, if Charlsie was able to thrive in the face of her diagnosis, maybe they can, too.

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