Category Archives: Ways to Give

2014 MetroPCS® Dallas Marathon Patient Champion Spotlight: Meet Elizabeth, age 11, of Arlington

In addition to the junior race director, the MetroPCS® Dallas Marathon® features 5 patient champions from TSRHC. The patient champion program is a way for the community to participate in race-weekend activities and fundraise on behalf of a patient.

Elizabeth Spoon age 11 of Arlington_34Elizabeth, age 11, of Arlington, Texas has been a patient at TSRHC’s Luke Waites Center for Dyslexia and Learning Disorders for a year and a half. Elizabeth had been homeschooled and her mom knew that something was wrong, so the pediatrician sent them to TSRHC. After going through testing, she was diagnosed with dyslexia and, with much excitement, was soon admitted to The Luke Waites Center.The Luke Waites Center for Dyslexia and Learning Disorders is named for Dr. Luke Waites, who in 1965 established a program at TSRHC to identify and treat children with learning disorders, primarily dyslexia. The World Federation of Neurology met at TSRHC in 1968 and formulated the first consensus definition of developmental dyslexia. With great progress in the dyslexia program at the hospital, Elizabeth’s parents now have to tell her to put her books away at night or else she will never go to bed! Outside of school, Elizabeth is an accomplished hockey player. Her future goals are to attend Yale University, because they have a great hockey team and an outstanding dyslexia center. Elizabeth is looking forward to representing the hospital as a Patient Champion at the 2014 Dallas Marathon!

Elizabeth was featured in the Dallas Morning News on Tuesday, November 25. Read article online here!

Opening Doors: Emily Ramirez’s Story

The school bell rings at Abilene High School and it is time to go to class.

Hundreds of students pour through the front entrance of the building with ease, opening and entering through the doors without thinking twice. But one student remains behind, struggling to open the door with her walker in the way.

After a few minutes of effort, she eventually opens the door and makes her way to class in the wake of her peers. This student is 17-year-old TSRHC patient Emily, and this was how she started her day, every day, for years.

“I’ve struggled through anything you could think of my entire life,” says Emily, who was born with cerebral palsy, a disorder that affects muscle tone, movement and motor skills. “I always had to have someone help me – including opening doors – just to get into school.”

While public buildings, including schools, must provide entrances that are wide enough to accommodate a wheelchair or walker, there is no law that requires the installation of automatic handicap doors. Emily looked beyond the law and saw a need.

Last summer, Emily took a stand against the struggle for accessibility for both herself and other students in her shoes. So she launched a campaign to install automatic doors at her school. Little did she know, her efforts would grow into a movement that would take Abilene, Texas, by storm.

Emily decided to name the campaign “Keep Calm Install Handicap Doors.” The phrase and logo was emblazoned on T-shirts, which were sold to raise funds for the cause. Local media, from television to radio stations, shared her story. Billboards and fliers were produced and displayed across town. Eventually the mayor of Abilene became involved, and even proclaimed a day in Emily’s honor to recognize her hard work and success.

“The whole community stepped forward when we began the campaign,” says Emily’s mother, Kimberly. “It was just overwhelming. It went beyond anything we had ever imagined.”

Emily’s initial goal was to have one electronic door installed at her school. But after a story about the campaign was featured on a local news station, several people wanted to lend their support. The original story aired on a Friday night. By the following Monday morning, four doors had been donated to the cause.

“We had no idea the campaign was going to explode, but it did. And it opened everybody’s eyes,” says Kimberly.

To date, the campaign has successfully led to the installation of 15 electronic doors across six Abilene school campuses. But to Emily, the true success of the campaign has been its positive effect on her fellow classmates. “I had to do this not only for me, but for everybody else that needs it. Seeing the reactions on the faces of students using the doors for the first time made me so happy,” says Emily. “We all have a new level of independence. It has been such a freeing feeling.” Emily’s display of determination reaches beyond Abilene and has inspired even her TSRHC doctor, Mauricio Delgado, M.D.

“Emily is a very smart young woman who does not let her mobility challenges stand in her way,” says Delgado. “Knowing that she is working so hard to help other kids like herself is extremely encouraging.”

Delgado is the director of TSRHC’s Neurology department, which provides care for orthopaedic patients who have related neurological disorders, including cerebral palsy. It is the most common physical disability in children, affecting approximately four out of every 1,000 school-aged children.

“Through medical and surgical treatments, along with assistive devices and therapy, TSRHC serves this patient population in a variety of ways,” says Delgado. “We
aim to maximize their functional potential so they can improve their participation in day-to-day activities.”

Emily’s experience at TSRHC helped build a foundation for the skills needed to create a successful campaign. “With the support of the hospital and the treatment I’ve received here, I have been given a sense of security and peace,” says Emily. “The care from Scottish Rite gives me the confidence I need to speak up for what I believe in.”

Emily’s confidence to stand up for what she believes in continues to grow – and she continues to open doors to a brighter future for herself and others.

***This article was featured as the cover story for our 2014 Volume 2 Rite Up Magazine

Bringing Comfort one Quilt at a Time: The Irving Quilt Guild

Patients in hospitals are usually getting all of the physical care they need, but another one of the most important elements of a successful recovery is comfort. A group of local volunteers known as the Irving Quilt Guild decided to make patients’ happiness their priority, and they’ve been making quilts ever since.

The History

In 1998, a few avid quilters decided to make use of their love for quilting, and started the Irving Quilt Guild.  Instead of simply quilting for fun, these active citizens started donating their quilts to three separate causes, and together they are improving the lives of many patients.

Today, the guild is made up of nearly 100 members, and they focus on three main projects:

  1. Baby blankets for newborns in need
  2. Quilts for servicemen and women
  3. Angel Quilts for the patients at the Texas Scottish Rite Hospital for Children

Angel Quilts

The angel quilt project focuses on cheering up young patients with colorful quilts to cuddle. The bright quilts liven up their hospital stay and bring happiness to children who have a lot to handle.

Each child receives their Angel Quilt after waking up from surgery, and it presents a memorable way to celebrate the exciting moment when these young patients are reunited with their parents.  Instead of the fearful memory of surgery, children are given a loving gift from a caring neighbor.

The guild has been able to donate 260 quilts, and with your help they can donate even more.  For more information visit their website and start comforting young patients today!

TSRHC Patients Give Back – Summer 2014

At TSRHC, we are very lucky to have generous friends that support the hospital’s mission to treat patients regardless of the family’s ability to pay. But what is truly special is when these generous friends happen to be patients. Here are three recent and unique stories about our patients giving back to TSRHC!

Crawfish for the Curve

Rowan Fitzsimmons - ptTSRHC patient Rowan, age 8 of Dallas, and her family held their second annual crawfish boil, Crawfish for the Curve, at their house in Dallas this spring. The proceeds were used to buy three mini iPads for the hospital and the rest of the money was donated to TSRHC as well. The event has raised $7,700 over the past two years!

Bootin’ Out Cerebral Palsy 5K Walk / Barrel Race

LEE_0207ACandy Schulz and her three children, a TSRHC patient family, organized and held the second annual Bootin’ Out Cerebral Palsy 5K Walk in Alvarado, Texas on Saturday, March 29. The 5K Walk commenced from the Town Square in Alvarado.

This year, a second event was hosted by the Schulz family, a barrel racing contest on May 17. Combined, the events raised $10,000 for TSRHC! The proceeds from both events were used to help underwrite the 2014 Farm & Ranch Day event held for our patient families and friends at Reverchon Park on Saturday, May 17.

Addison’s Birthday Wish

LEE_1072ATSRHC patient Addison, age 7 of Rockwall, made a special birthday wish to raise money for the hospital that has treated her since she was just 5 days old. Her initial goal was to reach $1,000, but after she received an overwhelming response on her first day she decided to increase her goal to $4,000! Addison and her family came to TSRHC on July 31 to donate the $4,200 that Addison raised through sharing her “Birthday Wish” sign in her neighborhood.

Thank you to all of these inspiring kids and to all of the friends that support TSRHC!

Crayon Club Kicks Off the Year with Annual Crawfish Boil

Are you looking for a way to get involved with Texas Scottish Rite Hospital for Children? We invite you to learn more through our young professionals group, Crayon Club!

Crayon Club was established to unite individuals dedicated to improving the lives of children. Together, through volunteerism, education and philanthropy, Crayon Club supports the mission of TSRHC.

Upcoming Events

2014 Crawfish Boil invitation copyCrawfish Boil: Crayon Club will be kicking off the year with the second annual Crawfish Boil! The event will take place on Thursday, May 22 from 7 – 9 p.m. at the Green Elephant. Tickets can be purchased online for $15. All you can eat crawfish compliments of Dodie’s Restaurant, special guest speaker and live music from the Rusty Brothers.

 

2014 Invitation copyCharacter Breakfast: A magical meet-and-greet experience complete with superheroes, team mascots and princesses. Breakfast, an autograph session, door prizes, face painting and other activities will be included. This event will take place Saturday, June 28 at 9 a.m. at TSRHC. Tickets can be purchased online for: $15/child  $25/adult  $150/table for 8. 

 

Summer Colors_no tsrhcSummer Colors: Summer Colors, now in its sixth year, was an idea born out of passion for raising awareness about TSRHC; while also giving the Dallas community exposure to local up and coming artists. Jenny Grumbles, Loren Koziol, and Jill and Dupree Scovell founded Summer Colors in 2009 and have continued to grow the event over the past four years. The celebration takes place in the form of a silent art auction and a cocktail reception, featuring original pieces by local artists. Involving the community is important to the founders and sponsorship opportunities are available. This event will take place on Thursday, August 31 at TSRHC. Tickets can be purchased online for $25 (or $30 at the door). For additional information on featured artists and photos from previous years, view our Summer Colors website.

Volunteerism

Crayon Club offers unique volunteer opportunities, including participating in events around the community, such as the Dallas Marathon, TSRHC’s Farm and Ranch Day, KidSwing and assisting with patient activities in the hospital’s Dr. Bob and Jean Smith Child Life Center

Philanthropy

Crayon Club provides opportunities to create friendships, network and connect with others interested in making a positive impact in their community. To be a part of Crayon Club, individuals give a suggested annual gift of $100, while couples give $150. These gifts help underwrite patient care, research, medical equipment and/or building renovations at TSRHC. Benefits of Crayon Club also include invitations to special events and other activities.

Be a Part of Crayon Club Today!

Crayon Club Logo

treasure street tsrhc

It’s Time for Treasure Street, TSRHC’s Signature Fundraiser Event

treasure street tsrhc

Once again, we’re pleased to announce that the 18th annual Treasure Street fundraiser will take place this Thursday, Oct. 17, on the grounds of the TSRHC campus.

The Treasure Street event is a key component of our mission to bring high-quality, state-of-the-art medical services to children with orthopaedic conditions. More importantly, the funds generated by events like Treasure Street allows us to take a multi-disciplinary approach to care; each child requires an individualized solution to their specific needs, regardless of his or her family’s ability to pay.

This year’s event brings back a “treasure street” of fantastic food, live music, a raffle and outstanding auction items. It will take place from 6:30-10:30pm; tickets cost $100 per person.  This year’s theme is “The Great State of Texas.” Tickets can be purchased online.

Families Helping Families

One of the reasons the Treasure Street event is so special to us is because it was created by the family of a former patient. Since its inception in 1996, the fundraiser has grown exponentially. In the first year, the event generated $150,000. But to date, the event has generated more than $8 million to help TSRHC families. Today, we consider the Treasure Street fundraiser our signature event.

This year’s event will likely be attended by more than 1,000 individuals that care about children’s health.

The 2013 chairs are state Rep. Dan Branch of Dallas and his wife, Stacey. The honorary chairs are philanthropists Dee and Dodge Carter. The chef chair is Janice Provost of Parigi.

How Can I Help?

There are many ways that you can be a part of Treasure Street.

If you are unable to attend on Thursday, you can still support Treasure Street by donating to Passion for the Patients. Donate to Treasure Street or TSRHC to commemorate any of life’s celebrations: birthdays, anniversaries, graduations and more. Or memorialize a friend, loved one or co-worker with your gift. And rest assured that your contribution goes precisely where it’s needed most – to promote the health and happiness of TSRHC kids!

But the easiest way to help is to buy a ticket and join us at Treasure Street for the festivities. We can’t wait to see you on Oct. 17!