Category Archives: Research

Kids Help Create Mobility Test for TSRHC

LEE_2703AChildren attending a summer camp at the Dallas Zoo have been helping researchers at TSRHC develop a mobility test to measure the functional ability of young amputees.

The test has been available for adults for a while: the Comprehensive High-level Activity Mobility Predictor (CHAMP) was designed by the military to monitor the progress of veterans with amputations. Researchers at TSRHC have decided to take CHAMP and adjust its parameters to fit younger amputees. To achieve this, they turned to the Dallas Zoo and their summer camp attendees for help.

Children at the camp were put throughAshlynn Johnson; staff Wilshaw Stevens a four-part course, similar to an obstacle course, which timed them as they performed various physical activities. One portion of the test included balancing on one foot with the other foot held over a small cone.

The results of the summer camp kids will be used as a base line for the new CHAMP test for young amputees. That way, a patient’s progress can be compared with others in her own age group, instead of relying on the original test designed for adults.

Since last summer, researchers have gathered the results of 275 campers ages 5 to 14, and they plan on testing hundreds more campers this summer. Ultimately, they hope to have data from 100 kids in each age group from 5 to 18, so the test can be comprehensive.

With the help of these able-bodied camp goers, soon patients at TSRHC will have an effective CHAMP test to measure their progress.

For more information, visit our Movement Science page on our website or view the recent article in the Dallas Morning News. Stay tuned for another news story on Dallas’ CBS11 later this week!

 

 

TSRHC Leads the Charge on Perthes Disease Research

While TSRHC is known across the globe for its excellence in pediatric orthopaedics, it is also recognized for groundbreaking research. The studies TSRHC staff participate in allow physicians worldwide to better understand various orthopaedic conditions.

One particular research study focuses on Legg-Calve-Perthes Disease (LCPD), a condition that affects the femoral head or the “ball” part of the hip joint. In Perthes Disease, the blood supply to the femoral head is disrupted and all or part of the femoral head dies from the lack of blood flow.

A History of Research

Twenty years ago, Tony Herring, M.D., started a large, prospective multi-center study with the purpose of understanding the outcomes of pediatric patients with Perthes Disease. Participating institutions treated patients with five different methods: non-surgical treatment, which included bracing and physical therapy; surgical treatment, which included femoral or pelvic osteotomy; and observation. Herring and his colleagues published their findings in the 2004 Journal of Bone and Joint Surgery.

Herring, along with Dan Sucato, M.D., M.S., led the efforts to invite the patients from the study who were treated non-operatively back to TSRHC for a clinical, radiographic and functional evaluation.

“The results of this study gave us the unique opportunity to review the long-term outcomes of patients who were treated with non-operative intervention. We found that the majority of these patients complained of increasing pain and dysfunction. This was the first study to document these findings at 20-year follow-up,” said Sucato. These results were published last year in The Journal of Bone and Joint Surgery.

Sucato was recently awarded the Angela Kuo Memorial Award, a $30,000 grant, from the Pediatric Orthopaedic Society of North America (POSNA) at the 2013 POSNA Annual Meeting. This grant will be used to fund the third part of this study, which will review the clinical, functional and radiographic outcomes of patients originally treated with surgery. At this time, 18 patients from across the nation have participated in the follow-up study.

Follow-up Study for the Future

One of these patients, Jaclyn Davidson, age 30, recently visited TSRHC for an evaluation with Sucato and Harry Kim, M.D., M.S. Davidson was originally treated with pelvic surgery when she was 7 years old.

“Having the opportunity to evaluate patients like Ms. Davidson after 20 years of follow-up allows us to keep learning about the long-term effects of treatment patterns for Perthes Disease. We are grateful for their time and efforts. The results of this data will help us improve treatments for our current patients with Perthes Disease,” Sucato noted.

As the study moves forward, TSRHC staff will continue to learn more about the condition and how to better treat patients who are affected by it.

To learn more about the disease and the multicenter study research for current patients with Perthes Disease happening at TSRHC, please visit: www.perthesdisease.org.

TSRHC Undertakes New Research to Determine Quality of Prosthetics for Children

Many military veterans who have suffered amputations are subjected to the CHAMP (Comprehensive High-Level Activity Mobility Predictor).  This test is a performance-based measure of the functional ability of veterans affected by limb loss.  Ultimately, the result of the test helps determine what treatment the supervising physician prescribes.

While the test works well for veterans, there isn’t a similar test available for children who may be missing one or more limbs.

This makes it difficult for our doctors to know the best treatment approach for children in need of prosthetic devices.  Because of our commitment to providing the best healthcare possible, we looked into finding something to help make that possible.

TSRHC Is Working Hard on Finding a Solution

Every summer, at Texas Scottish Rite Hospital for Children, we do all we can to help children who are in need of prosthetics to find a realistic and applicable measure.  During select Dallas Zoo Summer Camp programs, campers, ranging from Kindergarten to 8th grade, , are invited to help our researchers in identifying an appropriate method for identifying treatment.

All campers have the opportunity to participate in working their way through an agility course while standing on one leg, moving from side-to-side, running a shuttle run by weaving through cones, and then running forward, side-stepping, and running backwards.  TSRHC staff times the children as they perform these activities.

How Will the Collected Data Be Used?

Although no personally identifiable information about the children is shared, parents can have their children opt out of providing personal information if they choose..  All children are allowed to participate, and data is collected about their height, weight, waist circumference, and how long it takes them to run the course.

The data collected is used to provide a baseline of healthy scoring ranges for children without pediatric orthopedic conditions, which is critical for developing the most effective treatment approaches for children who do need prosthetic devices.