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Category Archives: Patient Stories

Amputee Ski Trip Spotlight: Natalie, age 15 of Fort Worth

Natalie_BlogNatalie, age 15 of Fort Worth, has been a Scottish Rite Hospital patient since she was 11 months old. Born without a fibula bone, she was treated at the hospital for a left leg amputation and has continued to remain a close friend of the hospital. As a returning participant, Natalie is looking forward to skiing with the instructor she met last year and conquering those familiar mountains. Although Natalie hasn’t skied since last year, she’s been busy pursuing her love of music and art. In her spare time, she can be found playing guitar and piano or sketching and painting. Her dream is to one day become an artist.

About the Annual Amputee Ski Trip

February 2017 will mark the 36th anniversary of the annual Amputee Ski Trip, held each year at the National Sports Center for the Disabled in Winter Park, Colo. Fourteen teenage patients with limb differences receive practical recreational therapy, while also having the opportunity to grow, build confidence and bond with others similar to them.

For more information, visit scottishritehospital.org/amputee-ski-trip.

Amputee Ski Trip Spotlight: Miranda, age 17 of Frisco

Miranda_blogMiranda, age 17 of Frisco, has been a patient at Scottish Rite Hospital since 2012. She is missing the fibula bone in her left leg and wears a lower leg prosthetic. Miranda enjoys babysitting and watching her favorite TV show, Grey’s Anatomy. This will be Miranda’s second time on the Amputee Ski Trip. Miranda is excited to make new friends who also wear prostheses. She also looks forward to seeing her instructor who helped her learn how to ski. Last year, Miranda had the chance to meet former Scottish Rite Hospital patient Patience Beard on the Amputee Ski Trip. Patience inspires her because she cheers and snowboards, all with her prosthetic leg. Miranda can’t wait to get back on the slopes at this year’s trip.

About the Annual Amputee Ski Trip

Miranda_BlogFebruary 2017 will mark the 36th anniversary of the annual Amputee Ski Trip, held each year at the National Sports Center for the Disabled in Winter Park, Colo. Fourteen teenage patients with limb differences receive practical recreational therapy, while also having the opportunity to grow, build confidence and bond with others similar to them.

For more information, visit scottishritehospital.org/amputee-ski-trip.

Amputee Ski Trip Spotlight: Ryanne, age 13 of Mineola

Ryanne Carr_blogRyanne, age 13 of Mineola, Texas, was adopted from Kazakhstan in 2005 at the age of two. She became a patient at Scottish Rite Hospital shortly after arriving to the United States. Ryanne was born with a condition called amniotic band syndrome, which constricts the growth of extremities including arms, legs and fingers. Because of that, Ryanne had both legs amputated and is missing part of her right arm.

Today, Ryanne is a very active teenager and loves participating in competitive sports, with track and field being her favorite activity. She served as the 2010 junior race director for the Dallas Marathon at the young age of 7 years old, where she represented the hospital and helped count down the start of the race.

The specialized care that she has received at Scottish Rite Hospital has inspired her to want to be a prosthetist when she grows up. Ryanne is most excited to learn how to ski and see snowy mountains for the first time at this year’s Amputee Ski Trip.

About the Annual Amputee Ski Trip

Ryanne pictured with Don Cummings in 2013.

Ryanne pictured with her prosthetist Don Cummings in 2013.

February 2017 will mark the 36th anniversary of the annual Amputee Ski Trip, held each year at the National Sports Center for the Disabled in Winter Park, Colo. Fourteen teenage patients with limb differences receive practical recreational therapy, while also having the opportunity to grow, build confidence and bond with others similar to them.

Ryan & Gia’s Moment

January

 

Siblings Ryan & Gia can ride tall, despite their congenital upper- and lower-limb differences. Hospital prosthetists created a customized leg for Ryan and a unique prosthetic arm for Gia. When it comes to helping kids live each moment to the fullest – we don’t horse around.

This month, we will be giving you a deeper look at our one-of-a-kind prosthetics department on our Facebook page. Join us for patient stories, flashbacks and interesting facts. For more information, visit scottishritehospital.org/prosthetics.

Dallas Marathon Patient Champion Spotlight: Omar, age 11 of Dallas

Since 2007, Texas Scottish Rite Hospital for Children patients have helped encourage and cheer on the runners of the Dallas Marathon through the Patient Champion program. This program is a way to highlight some of the wonderful kids the marathon generously supports each year. This year, we are excited to introduce you to Omar!

OmarOmar, age 11, of Dallas, Texas, has been a patient at Scottish Rite Hospital for about one year. He was diagnosed with osteosarcoma and as part of his treatment underwent a left leg above-the-knee amputation. Omar is now in remission and has been encouraging everyone he comes in contact with as he fearlessly learns to walk on his new prosthetic.

Omar is strong, outgoing and loving. He enjoys drawing, playing video games, riding his bike and playing monopoly. Before his amputation, Omar played football and basketball, and he hopes to start playing again soon. Omar is excited to cheer on all of the Dallas Marathon runners in December!

We invite you to join our team of fundraisers on behalf of Patient Champions like Omar and all the patients of Texas Scottish Rite Hospital for Children through our crowdrise page.

Watch a behind-the-scenes Facebook Live of his prosthetic fitting and one of his physical therapy appointments.

December: Max’s Moment to Shine

12_DEC_Max_Hi

Meet Max, age 9, of Arlington.

My Defining Moment:

Max’s mom, Virginia: TSRHC’s reputation gave us the confidence to adopt a child who had a prosthetic leg and hand differences.

My Moment to Remember:

We are always shown so much love and respect at the hospital. Our son is not just another appointment time or a number.

My Moment to Shine:

Max is a gifted artist. He was so excited when his drawing was selected as one of the hospital’s 2015 holiday card designs.

Give a Patient like Max a Moment to Shine – To support the hospital’s mission of giving children back their childhood, please call a TSRHC Development officer at 214-559-7650 or 800-421-1121, ext. 7650, or visit scottishritehospital.org/give.

Dallas Marathon Patient Spotlight: Grace, age 14, of Lucas

Since 2007, Texas Scottish Rite Hospital for Children patients have helped encourage and cheer on the runners of the Dallas Marathon through the Patient Champion program. This program is a way to highlight some of the wonderful kids the marathon generously supports each year. This year, we are excited to introduce you to Grace!

GraceGrace, age 14, of Lucas, Texas, has been a patient at Scottish Rite Hospital since 2014, when she came for treatment of scoliosis. Grace wore a brace for two years but hasn’t let it slow her down.

Currently in 9th grade, Grace is musically inclined. She plays piano and violin in the Allen High School orchestra and takes singing lessons. Grace enjoys swimming and giving back to her community. She has also been a member of the National Junior Honor Society since 8th grade and plans to go into the medical field as a pathologist.

Grace’s upbeat, outgoing personality makes her the perfect mentor for younger kids. She was a junior volunteer at Scottish Rite Hospital this summer and plans to return next year. Recognizing her mentoring qualities, Grace’s school district chose her for the PAL® Peer Assistance and Leadership program. She also teaches kindergarteners and first-graders at her church.

We invite you to join our team of fundraisers on behalf of Patient Champions like James and Matthew and all the patients of Texas Scottish Rite Hospital for Children through our crowdrise page.

 

 

One year after a new ACL, our Sports Medicine MVP is shining!

Nate for eblast copyNate Rogers tore his ACL in his debut of junior league hockey for the Philadelphia Little Flyers a U19-elite team. Dr. Philip Wilson reconstructed his ACL and Nate took his rehabilitation and training seriously. One month after his return, he was named one of the “Stars of the Week” for the Eastern Hockey League. His recognition came after an amazing weekend of games scoring three goals. We asked this Richardson native a few questions and here’s what he had to say:

When did you start playing hockey?

I started playing roller hockey when I was 6 and ice hockey when I was 9.

What are your dreams for your hockey career?

My long term goal is to play professional hockey but for now my goal is to play NCAA college hockey next year.

Since this area is home for you, are you still a Dallas STARS fan?

Yes, go Stars!

What do you remember about your experience with Dr. Wilson?

Only good things, he really helped me not only to get back to where I was before but to actually be stronger once I fully recovered.

What was the hardest thing to overcome after your injury and surgery?

The hardest thing to get back after surgery is confidence.

What advice do you have for young, injured athletes?

The harder you work the easier it gets.

For information about injury prevention and pediatric sports medicine, please visit our website at scottishritehospital.org/sports.

Dallas Marathon Patient Champion Spotlight: James and Matthew, age 13 of Plano

JamesSince 2007, Texas Scottish Rite Hospital for Children patients have helped encourage and cheer on the runners of the Dallas Marathon through the Patient Champion program. This program is a way to highlight some of the wonderful kids the marathon generously supports each year. This year, we are excited to introduce you to James and Matthew!

James and Matthew, 13-year-old twins from Plano, received treatment for cerebral palsy and a seizure disorder, respectively, from the medical experts at Scottish Rite Hospital. These fun and energetic boys love their friendly medical team, as well as attending hospital events and eating the hospital’s famous popcorn.

James and Matthew love swimming, playing cards and listening to music. They both value helping others and serving their community. James is passionate about music, specifically rock, and dreams of becoming a professional cheerleader when he grows up. MatthewMatthew is the family funny man, who enjoys doing comical impersonations. When he grows up, he hopes to become a police officer in a K9 unit. James and Matthew are excited to support all the runners of the 2016 Dallas Marathon, including their dad and step mom.

We invite you to join our team of fundraisers on behalf of Patient Champions like James and Matthew and all the patients of Texas Scottish Rite Hospital for Children through our crowdrise page.

Most Valuable “Patient” Leads His Team to State Basketball Title

For the past four years, patient Darius, age 18 of Lancaster, has had his eye on a specific goal – the basketball goal. When he was a high school freshman, his mom surprised him with a basketball and hoop for their home. Darius practiced religiously and became a phenomenal shooter, despite having a congenital hand difference.

Darius“He was leery about trying out for his high school team,” says Darius’ mom, Sequilla. “He could shoot but he couldn’t always get a good grip to catch the ball.”

Darius made the Lancaster Tigers Basketball team and worked countless hours to overcome the obstacles his hand difference presented. He advanced to the varsity team as a junior and became a starter and team captain his senior year.

“Darius has been an inspiration and a strong leader,” says Coach Ferrin Douglas. “The team doesn’t even notice his disability.”

When the Tigers made the state tournament this past spring, he helped lead his team to a second consecutive state title and was awarded Most Valuable Player of the tournament. He was also named to the 2016 All-Tournament team.

“I could not sit down the entire fourth quarter,” Sequilla says. “I had tears in my eyes thinking about all he went through.”

“When they announced my name as MVP, I cried tears of joy,” Darius says. “It felt good to know that I had helped my team.”

Darius graduated in May and is now pursuing basketball at Texas A&M Prairie View.

“I told him, ‘God chooses people for different reasons. There may come a time when your story helps someone else,” Sequilla says.