TSRHC
Temp

Latest News

Category Archives: Patient Stories

September: Issac’s Moment to Shine

09_SEP_Issac_HiMeet Issac, age 3, of Mesquite.

My Defining Moment:

Issac’s mom, Shannon: Issac was born with clubfeet and we were scared. We are so grateful for our referral to TSRHC.

My Moment to Remember:

Issac celebrated his 3rd birthday in the hospital’s park. It also marked his first year without his “special” shoes.

My Moment to Shine:

TSRHC is a place of hope. They have given our little boy a chance at the life he deserves. Look out world, here he comes!

Give a Patient like Issac a Moment to Shine – Your contribution of $100 provides one pair of basic orthotic shoes for a child affected by clubfoot. To donate or learn more about TSRHC’s Center for Excellence in Clubfoot, please visit scottishritehospital.org.

 

Patient Embraces the Chance to Help Others


It’s not every day you see a 10-year-old in a scoliosis brace organizing a crawfish boil, but that’s exactly what Scottish Rite Hospital patient Rowan, of Dallas, does each year at her annual Crawfish for the Curve event. Since 2012, Rowan and her family have been serving up a Cajun feast as a way to raise awareness and money for the hospital where Rowan receives treatment for scoliosis. Motivated by a desire to help patients like her, Rowan has grown this event from a backyard family gathering to a full-blown neighborhood block party.

“Through this event, we have been able to tell others about the hospital and all the kids they help,” says Rowan. Crawfish for the Curve has not only successfully raised awareness, the event has raised more than $40,000 for the treatment of scoliosis.

Screen Shot 2016-08-11 at 1.04.13 PMOne of Rowan’s most vivid memories from the hospital is visiting the Child Life playroom. “I felt really happy there,” she recalls. “It was the first time I smiled after getting my body cast.”

Rowan wants to give other patients the same positive experience, so a special part of her donation includes iPads specifically for the playroom. She hopes the devices will make other patients smile just like she did.

Rowan is a shining example of overcoming challenges and putting others first. Her advice to kids newly diagnosed with scoliosis is to embrace the condition. “What makes you different also makes you unique and special,” she explains, “and that’s a really good thing.”

August: Haven’s Moment to Shine

08_AUG_Haven_Hi

Meet Haven, age 13, of Dallas.

My Defining Moment:

My parents thought I might have dyslexia, so they took me to Scottish Rite Hospital for testing.

My Moment to Remember:

They shared before and after videos of me reading that showed my improvement. Finally, I knew I could do well in school.

My Moment to Shine:

Before, I never raised my hand in class to answer a question or volunteer to read. Now, I don’t hesitate.

Give a Patient like Haven a Moment to Shine – Your contribution of $90 provides supplies for a child to receive one year of dyslexia instruction using TSRHC’s Take Flight curriculum. To donate or learn more about the hospital’s Luke Waites Center for Dyslexia and Learning Disorders, please visit scottishritehospital.org.

Scottish Rite Hospital: The Leader in Treating Hand Disorders

From a child’s hands, imagination becomes creation. Through their hands, children explore the world around them. For thousands of children with hand and upper limb disorders, Texas Scottish Rite Hospital for Children has been a source of hope and healing. Learn how the Charles E. Seay Jr. Hand Center positions Scottish Rite Hospital as a leader in treating pediatric hand disorders.

Focus on Clinical Patient Treatment and Research

The Hand Center delivers a setting for both clinical patient treatment and clinical research focused on the treatment and care for pediatric patients with hand and upper limb disorders, says Dr. Scott Oishi, the Center’s director.

“Our clinical practice [treats] a variety of children who are either born with congenital hand differences or upper extremity differences, or patients who have had trauma or something happen to them after they’re born,” he says. “There are a lot of patients who come through here and get no surgery at all because all they really need is a lot of encouragement and ability to grow and expand their horizons.”

From treating children with congenital hand abnormalities, such as webbed fingers, reconstructing children’s hands with extra digits, or changing the position of fingers on hands, the Hand Center strives to give children back their childhoods.

Care for Patients Across the Age Continuum

Dr. Oishi and Staff Hand Surgeon Dr. Christopher M. Stutz have the privilege of seeing many of their pediatric patients from the time they’re a few days old until the time they become 18 years old. “We’re able to keep a database of our patients as far as what type of diagnosis they have, what type of surgeries they underwent, and what their outcomes were, based on very good outcome measures,” Dr. Oishi says.

“I think one of the benefits of being a patient here [at Scottish Rite Hospital] is that in our clinic, if we feel you need to have therapy, we have a therapist who is literally steps away from us,” Dr. Oishi adds.

Building Confidence Through Hand Camp

Scottish Rite Hospital patient Mason was born unable to move his left hand. Mason’s father, Randy, says initially no one was able to name the source of the problem. “In the first seven days of his life, we ended up visiting six doctors, a lot of specialists, and we got referred to [Scottish Rite Hospital],” he says. “As soon as we walked in, they were able to identify the issue.”

Dr. Oishi notes that Mason underwent a free functional gracilis muscle transfer, transferring muscle from his leg to his arm.

“He has roughly 40 to 45 percent usage of his left hand already at the age of 7. We could tell that he’s growing and getting more use all the time,” Randy says. “[Scottish Rite Hospital], with the usage of Hand Camp, has given him the confidence to be able to talk about his arm. He’s not embarrassed by his arm; he doesn’t hide his arm from his friends.”

Amy Lake, therapist and co-director of the Scottish Rite Hospital Hand Camp, says the program started in 1995 to bring families together. “A child with a hand difference can go to school, be involved in activities, and never come in contact with another kid with a hand difference,” she says.

Andrea Brown, Hand Camp co-director, says the Hand Camp instills invaluable confidence in the children who attend. Moreover, parents also benefit from interacting with one another, as they receive valuable information to help their children as well.

Trained Fellows Who Deliver Hand Treatment Excellence

Dr. Oishi emphasizes that one of the most important aspects of the Hand Center is the training this team devotes to their clinicians. “We train fellows and trainees that then go out and practice pediatric hand surgery,” he says. “Our Center’s message is really one that Peter Carter, one of our retired hand surgeons here, taught us all — the to-for rule.”

“Either do something to them or you can do something for them,” explains Scottish Rite Hospital Staff Hand Surgeon Dr. Marybeth Ezaki. “We practice that rule every single day.”

Support Those Who Support TSRHC Patients

As a world leader in treating pediatric orthopedic conditions, Scottish Rite Hospital provides the highest level of care for children from birth to age 18, regardless of a family’s ability to pay. To learn more about Scottish Rite Hospital, its mission, and ways you can support continuing research for treatment of pediatric hand disorders, call 214-559-5000 or visit scottishritehospital.org.

July: Zackery’s Moment to Shine

07_JUL_Zackery_Hi

Meet Zackery, age 16, of Gun Barrel City.

My Defining Moment:

I was born without a thigh bone in my right leg and my mom brought me to TSRHC. I was treated there and fit with a prosthesis.

My Moment to Remember:

I sang the national anthem at AT&T Stadium at a hospital benefit. It was my first time there and I couldn’t stop smiling.

My Moment to Shine:

Without help from Scottish Rite Hospital, I wouldn’t’ be in my high school marching band – it has been a blast!

Give a Patient like Zackery a Moment to Shine – A contribution of $500 covers the cost of one pediatric-size prosthetic foot for a child with limb loss or deficiency. To donate or learn about TSRHC’s Prosthetics and Orthotics department, please visit scottishritehospital.org.

 

June: Juliet’s Moment to Shine

06_JUN_Juliet_Hi

Meet Juliet, age 7, of Corinth.

My Defining Moment:

Juliet’s mom, Holly: Juliet was referred to TSRHC with amniotic band syndrome but we learned she also had severe hip dysplasia.

My Moment to Remember:

She loves Scottish Rite – we had to have the same toys at home as in TSRHC’s playroom because she didn’t want to leave.

My Moment to Shine:

Juliet has a wicked fastball! She wants to get a softball scholarship and become an orthopedic surgeon like her own, Dr. Sucato.

Give a Patient like Juliet a Moment to Shine – Juliet represented TSRHC as a Dallas Marathon patient champion. To learn more about the event, which benefits TSRHC, visit dallasmarathon.com. If you would like to make the hospital the beneficiary of an event, call TSRHC’s Development department at 214-559-7650.

Making a Difference with a Difference

Sports are a favorite pastime for active TSRHC patient Micah, age 11, of Shady Shores. He throws football passes, makes baskets and blocks soccer goals, but the most important stats he has posted are as the founder of a holiday toy drive for the patients of Scottish Rite Hospital.

Micah Pinson age 11 of Shady Shores_01Five years and more than 15,000 toys later, Micah is still going strong. “It’s an amazing feeling to give back,” he says.

His father, Richard, recalls brining 8-week-old Micah to TSRHC for the first time to be treated for a congenital hand difference.

“The hospital was like a knot at the end of a rope,” Richard says. “We focused on our child and they took care of everything else.”

Micah has many new friends who have supported his toy drive including local Masons, the Farmers Branch Police Department, Ebby Halliday Realtors, Glazer’s Inc. and Transwestern.

Upon visiting with Micah, it’s clear that the best gift he gives to others is his attitude.

“I used to be picked on a little,” he explains. “But one morning I woke up and realized that I am happy with my hand difference. It feels awesome to be different and to help other kids.”

Hear Micah’s advice to children with orthopedic conditions and learn what he wants to be when he grows up:

May: Stephen’s Moment to Shine

05_MAY_Stephen_Hi

Meet Analia, age 6, of Carrollton, and Volunteer Executive Committee President Stephen Apple. In his words below:

My Defining Moment:

As a Scottish Rite Mason, I knew about TSRHC. I took a tour – that did it/ I wanted to be a volunteer.

My Moment to Remember:

I saw a little girl with prosthetic legs running around in the hospital’s atrium and it reminded me…we help kids be kids.

My Moment to Shine:

At TSRHC, I’m never bored. I’m engaged. I truly feel my contributions can make a difference.

Volunteer and Give a Patient like Analia a Moment to Shine – Share a shining moment with TSRHC patients, families and supporters as a hospital volunteer. To learn more about becoming a volunteer, please visit scottishritehospital.org/volunteer.

April: Layla’s Moment to Shine

04_APR_Layla_Hi

Meet Layla, age 16, of Dallas.

My Defining Moment:

I came because I had an extra bone in my ankle that was causing scar tissue buildup, swelling and inflammation.

My Moment to Remember:

I was invited to speak at the hospital’s KidSwing Golf Tournament, which was cool because I’ve never done that kind of thing.

My Moment to Shine:

I’ve performed in the Nutcracker with the Texas Ballet Theater for three years in a row. It’s a lot of fun!

Give a Patient like Layla a Moment to Shine: A gift of $300 will cover the cost of advanced imaging for an ankle problem or injury to plan for a minimally invasive arthroscopic treatment. To donate or learn more about TSRHC’s Center for Excellence in Sports Medicine, please visit scottishritehospital.org/sports.

 

Helping Children Like Colby

When you witness the poise and fluid movements of Colby on stage, you know you’re witnessing a young dance professional and ballerina in action. In fact, Colby couldn’t picture life without dancing, and nothing, not even scoliosis, was going to keep her from pursuing the art of dance. Discover how Texas Scottish Rite Hospital for Children (TSRHC) was Colby’s life force in helping her stand tall on stage.

What Is Scoliosis?

Scoliosis is a condition caused by an irregular twisting or curvature of the spine into a C- or S-shape. Scoliosis affects between 2 to 3 percent of school-age children, most often appearing in adolescent girls ages 10 to 15. Different forms of scoliosis exist, including the most common type, idiopathic scoliosis (it’s currently unknown what causes idiopathic scoliosis).

Dr. Amy McIntosh, a staff orthopedist at TSRHC, recalls that Colby’s spine curvature was greater than 50 degrees when the two first met. After assessing Colby’s curvature based on predictive factors of whether her curvature was going to get better or worse, Dr. McIntosh predicted that her curve was only going to worsen with age.

“She had the type of curve that I could do a selective thoracic fusion on,” Dr. McIntosh explains. “I could fuse only the vertebrae attached to her rib cage and leave the vertebrae that are in her lumbar spine untouched.” This type of surgery would allow Colby to support her flexibility, a critical asset for a dancer.

Three months after scoliosis surgery, Colby is standing tall once more. Her shoulders are even; the prominent curve that once characterized her back is gone, and her waist is more evenly symmetrical.

TSRHC Gets Colby Dancing Again

“It’s just been amazing,” Colby remarks about the TSRHC experience. “Five days I was at the hospital, and everyone was so nice.”

Today, Colby is back to pirouettes and pliés, just as graceful as when she first laced up her ballet slippers as a child.

Watch Colby’s Story