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Category Archives: Patient Stories

Fore The Love of the Game

At Texas Scottish Rite Hospital for Children a key component of our mission is to treat the whole child, not just their medical condition. Learn to Golf is one of the cornerstones of therapeutic recreation here at the hospital. Ten clinics are held at golf courses around the state, where specially trained golf professionals teach our physically challenged patients the fundamentals of the game, including swinging, safety and etiquette.

More than 1,200 patients have reaped the rehabilitative benefits since the program was launched, including some who have gone on to become members of their school golf teams or gotten involved in their local PGA, LPGA and United States Golf Association junior golf programs.

Besides free instruction, participants who don’t own clubs receive a free set. Kids are also eligible for scholarships that provide funding for involvement in local junior golf programs.

Hospital friends such as Gary Pickle, a local instructor and club maker, have helped patients like Dagem Adehena by making specialized clubs paid for by the hospital’s Learn to Golf program. Since participating in the program, Dagem’s passion for golf has continued to grow. Watch as we follow his journey and see what he’s up to today.

 

TSRHC Patient Autumn-Rose Encourages Others to Dream Big

After years of hip pain, Autumn-Rose and her mom knew something wasn’t quite right. Through her years of running track at Coronado High School, Autumn-Rose had experienced pain so intense in her hip that sometimes she couldn’t even walk. Doctor after doctor, every answer was different and no one seemed to be able to resolve the issue. Finally, a Lubbock orthopedist diagnosed Autumn-Rose with hip dysplasia and referred her to Texas Scottish Rite Hospital for Children where Chief of Staff Dr. Daniel Sucato performed surgery in January 2012.

ARDream Big

Autumn-Rose did not let this obstacle hold her back. After surgery, she quickly returned to the activities that she loves, like running track, cheering for both her school and a competitive squad, and competing in beauty pageants. She was crowned Miss Limestone County Outstanding Teen and won the Miss South Texas Outstanding Teen pageant.

Autumn-Rose chose to make the most of her days in the spotlight at beauty pageants by empowering other young people. She used her platform, “Dream Big: Overcoming Medical Hardships,” to talk about her experience with hip dysplasia and encourage others to dream big and live fearlessly.

_WAT1972Looking Ahead

Autumn-Rose will attend Sam Houston State University in Huntsville this fall, majoring in forensic chemistry. She has made the cheer squad and will cheer for the Sam Houston Bearkats at their football and basketball games. This summer she took time off from Miss Texas to be a counselor at Ceta Canyon Christian Church Camp.

 

Inside Your Latest Rite Up Magazine – 2015, Issue 1

Rite Up, the hospital’s quarterly magazine, hit mailboxes this week! We’re giving you a sneak peek of all the great articles featured in this issue. View your copy at home or take a look at the E-Mag version on our website.

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A World of Expertise, Locally Grown

TSRHC has blossomed from its Texas roots into one of the most respected pediatric orthopedic institutions in the world. Learn more in our cover story article.

A Colorful Celebration of Giving

TSRHC unveils a tribute to the generous donors who make the hospital’s mission possible. Read the article about our newly installed Giving Wall in our Donor Spotlight.

Trustee Profile: Making Each Moment Count

Trustee Tom Higgins has been a Texas Mason for nearly 50 years. Learn how he got involved with Masonry and TSRHC in our Trustee Profile.

New Lawson Fellow

Read about Ozan Razi, M.D., of Cyprus, Turkey, who is our current L. Ray Lawson, M.D., International Pediatric Spine Fellow specializing in the research of spinal deformity.

Patients in the Spotlight: Monkey Business Benefits TSRHC

TSRHC patient Emily, age 9 of Forney, Texas, helps raise funds and children’s spirits with her cheerful sock monkeys!

Hospital Happenings

View photos and updates from the following special events:

  • Amputee Ski Trip
  •  2014 Treasure Street
  • Dallas Cowboys Holiday Visit
  • San Angelo Sporting Clay Shoot
  • Cotton Bowl Visit 

You can also request to be mailed a copy of this quarterly magazine. Please call the Public Relations department at (214) 559-7656 or (800) 421-1121, ext. 7656.

TSRHC Hip Patient Families Connect Play Date via Facebook

At TSRHC, we take pride in treating the “whole child” – mind, body and spirit, with ancillary services that include child life programs, individualized physical therapy and in-house specialists in anesthesiology, pharmacy, radiology and psychology. We also have specialized sports and recreational programs that encourage socialization and bonding among peers.

Hip Dysplasia Playgroup_02It’s very often that our patient’s experience at TSRHC will go far beyond medical treatment – we hope you make yourself right at home.

And that was exactly what three mothers who share the common bond of raising toddlers with hip dysplasia did. They found each other via Facebook and created a play date on familiar grounds — in TSRHC’s atrium.

The three patients are all being treated in TSRHC’s Center for Excellence in Hip Disorders and are currently in spica casts, which are body casts that are typically used after surgery to help immobilize the hips and thighs.

One mom said, “It has been wonderful to connect with other families who are experiencing the same journey, and Facebook has been great for that but it can’t compare to meeting people in real life and sharing stories, diagnoses, surgery experiences, spica cast care tips, and other lessons learned. I organized the play date for my daughter so she could see other kids in casts that are like her, and I think I probably got more out of it than she did. These moms are amazing.”

Marlee Cole, Evan Hinojosa, Virigina SorrowIn addition to connecting with other patient families via Facebook, TSRHC’s Family Resource Center has a Peer Support Program that connects TSRHC families who have children with the same medical condition or who have had the same procedure. For more information, please contact our Family Resource Center at (214) 559-7573 or (800) 421-1121, ext. 7573, or email frc@tsrh.org.

Amputee Ski Trip Spotlight: Selam, age 16 of Lewisville, Texas

Selam, age 16 of Lewisville, Texas, is excited to be attending the Amputee Ski Trip for the second time. Selam was born in Ethiopia and suffered burns as a baby, resulting in the need to have her leg amputated. Texas Scottish Rite Hospital for Children has given her the ability to be a kid and participate in normal activities girls her age like to do, such as running. She absolutely loves to read, as well as make new friends, which she looks forward to doing on the trip.

About TSRHC’s Ski Trip:
Since 1981, Texas Scottish Rite Hospital for Children has hosted an Annual Amputee Ski Trip for patients. Fourteen teenage patients, as well as medical staff and chaperones, spend a week at the National Sports Center for the Disabled (NSCD), in Winter Park, Colorado.In a continuing effort to improve the lives of patients, Texas Scottish Rite Hospital for Children recognized that snow skiing is well suited for amputees, and with special equipment, they quickly become competitive and often excel at the sport.

Skiing at the renowned National Sports Center for the Disabled creates a focus for the trip, but the personal growth and challenges the teens overcome are often more life-changing than the actual accomplishment of skiing. The goal of the trip is to foster a sense of self-confidence, discovery and independence for these teens.

Since the first Amputee Ski Trip in 1981, the community has teamed up with the hospital to make this opportunity possible to patient families. American Airlines has sponsored the trip since 2005. Prior to that, Delta Airlines supported the event for more than 20 years. Multiple other generous supporters from the community, including the Stephen M. Seay Foundation help make this trip possible!

Amputee Ski Trip Spotlight: Selam, age 16 of Lewisville, Texas

‘I’m trying something different this year. I’m going to ski with one leg.’ – Selam

‘I’m trying something different this year. I’m going to ski with one leg.’ – Selam

Selam, age 16 of Lewisville, Texas, is excited to be attending the Amputee Ski Trip for the second time. Selam was born in Ethiopia and suffered burns as a baby, resulting in the need to have her leg amputated. Texas Scottish Rite Hospital for Children has given her the ability to be a kid and participate in normal activities girls her age like to do, such as running. She absolutely loves to read, as well as make new friends, which she looks forward to doing on the trip.

About TSRHC’s Ski Trip:
Since 1981, Texas Scottish Rite Hospital for Children has hosted an Annual Amputee Ski Trip for patients. Fourteen teenage patients, as well as medical staff and chaperones, spend a week at the National Sports Center for the Disabled (NSCD), in Winter Park, Colorado.In a continuing effort to improve the lives of patients, Texas Scottish Rite Hospital for Children recognized that snow skiing is well suited for amputees, and with special equipment, they quickly become competitive and often excel at the sport.

Skiing at the renowned National Sports Center for the Disabled creates a focus for the trip, but the personal growth and challenges the teens overcome are often more life-changing than the actual accomplishment of skiing. The goal of the trip is to foster a sense of self-confidence, discovery and independence for these teens.

Since the first Amputee Ski Trip in 1981, the community has teamed up with the hospital to make this opportunity possible to patient families. American Airlines has sponsored the trip since 2005. Prior to that, Delta Airlines supported the event for more than 20 years. Multiple other generous supporters from the community, including the Stephen M. Seay Foundation help make this trip possible!

Amputee Ski Trip Spotlight: Sarah, age 15 of Wylie

DSC_4967

Sarah (pictured left) with her sister Erika on the 2014 Amputee Ski Trip

Sarah, age 15 of Wylie, Texas has been a patient of Texas Scottish Rite Hospital for Children (TSRHC) since 2004. She has been a patient for two surgeries separating her webbed fingers, as well one on her amputated leg. Sarah loves meeting people at the hospital and making new friends.  In addition, she loves ballet, playing soccer, reading, gymnastics and water sports.  Sarah cannot wait to return to Colorado again this year so she can perfect her snowboarding skills she learned on last year’s trip.

About TSRHC’s Ski Trip:

Since 1981, Texas Scottish Rite Hospital for Children (TSRHC) has hosted an Annual Amputee Ski Trip for patients. Fourteen teenage patients, as well as medical staff and chaperones, spend a week at the National Sports Center for the Disabled (NSCD), in Winter Park, Colorado.

In a continuing effort to improve the lives of patients, TSRHC recognized that snow skiing is well suited for amputees, and with special equipment, they quickly become competitive and often excel at the sport.

Skiing at the renowned National Sports Center for the Disabled creates a focus for the trip, but the personal growth and challenges the teens overcome are often more life-changing than the actual accomplishment of skiing. The goal of the trip is to foster a sense of self-confidence, discovery and independence for these teens.

Since the first Amputee Ski Trip in 1981, the community has teamed up with the hospital to make this opportunity possible to patient families. American Airlines has sponsored the trip since 2005. Prior to that, Delta Airlines supported the event for more than 20 years. Multiple other generous supporters from the community, including the Stephen M. Seay Foundation help make this trip possible!

Amputee Ski Trip Spotlight: Zach, age 16 of Gun Barrel City, Texas

Photo courtesy of Fort Worth Star Telegram at the 2015 Amputee Ski Trip Send-Off Party

Photo courtesy of Fort Worth Star Telegram at the 2015 Amputee Ski Trip Send-Off Party

Zach, age 16 of Gun Barrel City, Texas, has been a patient at Texas Scottish Rite Hospital for Children (TSRHC) since he was one. Zach needed help with his right leg and TSRHC was able to build him a prosthetic. Zach took his first steps with a prosthetic leg and he has been unstoppable ever since. Zach plays football and is in the marching band and the choir. When he grows up, Zach wants to pursue a career in physical therapy. This is his first year on the Scottish Rite Hospital Amputee Ski Trip.

About TSRHC’s Ski Trip:
Since 1981, Texas Scottish Rite Hospital for Children has hosted an Annual Amputee Ski Trip for patients. Fourteen teenage patients, as well as medical staff and chaperones, spend a week at the National Sports Center for the Disabled (NSCD), in Winter Park, Colorado.In a continuing effort to improve the lives of patients, Texas Scottish Rite Hospital for Children recognized that snow skiing is well suited for amputees, and with special equipment, they quickly become competitive and often excel at the sport.

Skiing at the renowned National Sports Center for the Disabled creates a focus for the trip, but the personal growth and challenges the teens overcome are often more life-changing than the actual accomplishment of skiing. The goal of the trip is to foster a sense of self-confidence, discovery and independence for these teens.

Since the first Amputee Ski Trip in 1981, the community has teamed up with the hospital to make this opportunity possible to patient families. American Airlines has sponsored the trip since 2005. Prior to that, Delta Airlines supported the event for more than 20 years. Multiple other generous supporters from the community, including the Stephen M. Seay Foundation help make this trip possible!

Amputee Ski Trip Spotlight: Erika, age 16 of Wylie, Texas

Erika (right) pictured on the 2014 Ski Trip with her sister Sarah

Erika (right) pictured on the 2014 Ski Trip with her sister Sarah

Erika, age 16 of Wylie, Texas, has been a patient at Texas Scottish Rite Hospital for Children (TSRHC) since 2006. She had severe clubfeet as a child, which required amputation. Although nervous at age 8, Erika was ready to do the amputation because her sister is an amputee and she gave her the courage to go through with it. Some of Erika’s favorite activities include guitar, knitting, sewing, crocheting, blogging, cooking and volunteering as a Junior Volunteer at TSRHC. She is looking forward to her second year on the Amputee Ski Trip, where she will spend the week with all of her friends from the hospital.

About TSRHC’s Ski Trip:
Since 1981, Texas Scottish Rite Hospital for Children has hosted an Annual Amputee Ski Trip for patients. Fourteen teenage patients, as well as medical staff and chaperones, spend a week at the National Sports Center for the Disabled (NSCD), in Winter Park, Colorado.

In a continuing effort to improve the lives of patients, Texas Scottish Rite Hospital for Children recognized that snow skiing is well suited for amputees, and with special equipment, they quickly become competitive and often excel at the sport.

Skiing at the renowned National Sports Center for the Disabled creates a focus for the trip, but the personal growth and challenges the teens overcome are often more life-changing than the actual accomplishment of skiing. The goal of the trip is to foster a sense of self-confidence, discovery and independence for these teens.

Since the first Amputee Ski Trip in 1981, the community has teamed up with the hospital to make this opportunity possible to patient families. American Airlines has sponsored the trip since 2005. Prior to that, Delta Airlines supported the event for more than 20 years. Multiple other generous supporters from the community, including the Stephen M. Seay Foundation help make this trip possible!

Amputee Ski Trip Spotlight: Cruz, age 16 of Baird, Texas

IMG_2527Cruz, age 16 of Baird, Texas, has been a patient at Texas Scottish Rite Hospital for Children (TSRHC) for 9 years. An accident in 2007 resulted in the amputation of Cruz’s leg. Even though the amputation happened on his birthday, he has had nothing but a positive attitude and a fighting spirit. TSRHC is thrilled to help Cruz get back on his feet. He is excited to go to Colorado and he is ready to make friends with other amputees. Cruz is artistically talented and hopes to one day become a tattoo artist.

About TSRHC’s Ski Trip:
Since 1981, Texas Scottish Rite Hospital for Children has hosted an Annual Amputee Ski Trip for patients. Fourteen teenage patients, as well as medical staff and chaperones, spend a week at the National Sports Center for the Disabled (NSCD), in Winter Park, Colorado.

In a continuing effort to improve the lives of patients, Texas Scottish Rite Hospital for Children recognized that snow skiing is well suited for amputees, and with special equipment, they quickly become competitive and often excel at the sport.

Skiing at the renowned National Sports Center for the Disabled creates a focus for the trip, but the personal growth and challenges the teens overcome are often more life-changing than the actual accomplishment of skiing. The goal of the trip is to foster a sense of self-confidence, discovery and independence for these teens.

Since the first Amputee Ski Trip in 1981, the community has teamed up with the hospital to make this opportunity possible to patient families. American Airlines has sponsored the trip since 2005. Prior to that, Delta Airlines supported the event for more than 20 years. Multiple other generous supporters from the community, including the Stephen M. Seay Foundation help make this trip possible!