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Category Archives: Patient Stories

June: Juliet’s Moment to Shine

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Meet Juliet, age 7, of Corinth.

My Defining Moment:

Juliet’s mom, Holly: Juliet was referred to TSRHC with amniotic band syndrome but we learned she also had severe hip dysplasia.

My Moment to Remember:

She loves Scottish Rite – we had to have the same toys at home as in TSRHC’s playroom because she didn’t want to leave.

My Moment to Shine:

Juliet has a wicked fastball! She wants to get a softball scholarship and become an orthopedic surgeon like her own, Dr. Sucato.

Give a Patient like Juliet a Moment to Shine – Juliet represented TSRHC as a Dallas Marathon patient champion. To learn more about the event, which benefits TSRHC, visit dallasmarathon.com. If you would like to make the hospital the beneficiary of an event, call TSRHC’s Development department at 214-559-7650.

Making a Difference with a Difference

Sports are a favorite pastime for active TSRHC patient Micah, age 11, of Shady Shores. He throws football passes, makes baskets and blocks soccer goals, but the most important stats he has posted are as the founder of a holiday toy drive for the patients of Scottish Rite Hospital.

Micah Pinson age 11 of Shady Shores_01Five years and more than 15,000 toys later, Micah is still going strong. “It’s an amazing feeling to give back,” he says.

His father, Richard, recalls brining 8-week-old Micah to TSRHC for the first time to be treated for a congenital hand difference.

“The hospital was like a knot at the end of a rope,” Richard says. “We focused on our child and they took care of everything else.”

Micah has many new friends who have supported his toy drive including local Masons, the Farmers Branch Police Department, Ebby Halliday Realtors, Glazer’s Inc. and Transwestern.

Upon visiting with Micah, it’s clear that the best gift he gives to others is his attitude.

“I used to be picked on a little,” he explains. “But one morning I woke up and realized that I am happy with my hand difference. It feels awesome to be different and to help other kids.”

Hear Micah’s advice to children with orthopedic conditions and learn what he wants to be when he grows up:

May: Stephen’s Moment to Shine

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Meet Analia, age 6, of Carrollton, and Volunteer Executive Committee President Stephen Apple. In his words below:

My Defining Moment:

As a Scottish Rite Mason, I knew about TSRHC. I took a tour – that did it/ I wanted to be a volunteer.

My Moment to Remember:

I saw a little girl with prosthetic legs running around in the hospital’s atrium and it reminded me…we help kids be kids.

My Moment to Shine:

At TSRHC, I’m never bored. I’m engaged. I truly feel my contributions can make a difference.

Volunteer and Give a Patient like Analia a Moment to Shine – Share a shining moment with TSRHC patients, families and supporters as a hospital volunteer. To learn more about becoming a volunteer, please visit scottishritehospital.org/volunteer.

April: Layla’s Moment to Shine

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Meet Layla, age 16, of Dallas.

My Defining Moment:

I came because I had an extra bone in my ankle that was causing scar tissue buildup, swelling and inflammation.

My Moment to Remember:

I was invited to speak at the hospital’s KidSwing Golf Tournament, which was cool because I’ve never done that kind of thing.

My Moment to Shine:

I’ve performed in the Nutcracker with the Texas Ballet Theater for three years in a row. It’s a lot of fun!

Give a Patient like Layla a Moment to Shine: A gift of $300 will cover the cost of advanced imaging for an ankle problem or injury to plan for a minimally invasive arthroscopic treatment. To donate or learn more about TSRHC’s Center for Excellence in Sports Medicine, please visit scottishritehospital.org/sports.

 

Helping Children Like Colby

When you witness the poise and fluid movements of Colby on stage, you know you’re witnessing a young dance professional and ballerina in action. In fact, Colby couldn’t picture life without dancing, and nothing, not even scoliosis, was going to keep her from pursuing the art of dance. Discover how Texas Scottish Rite Hospital for Children (TSRHC) was Colby’s life force in helping her stand tall on stage.

What Is Scoliosis?

Scoliosis is a condition caused by an irregular twisting or curvature of the spine into a C- or S-shape. Scoliosis affects between 2 to 3 percent of school-age children, most often appearing in adolescent girls ages 10 to 15. Different forms of scoliosis exist, including the most common type, idiopathic scoliosis (it’s currently unknown what causes idiopathic scoliosis).

Dr. Amy McIntosh, a staff orthopedist at TSRHC, recalls that Colby’s spine curvature was greater than 50 degrees when the two first met. After assessing Colby’s curvature based on predictive factors of whether her curvature was going to get better or worse, Dr. McIntosh predicted that her curve was only going to worsen with age.

“She had the type of curve that I could do a selective thoracic fusion on,” Dr. McIntosh explains. “I could fuse only the vertebrae attached to her rib cage and leave the vertebrae that are in her lumbar spine untouched.” This type of surgery would allow Colby to support her flexibility, a critical asset for a dancer.

Three months after scoliosis surgery, Colby is standing tall once more. Her shoulders are even; the prominent curve that once characterized her back is gone, and her waist is more evenly symmetrical.

TSRHC Gets Colby Dancing Again

“It’s just been amazing,” Colby remarks about the TSRHC experience. “Five days I was at the hospital, and everyone was so nice.”

Today, Colby is back to pirouettes and pliés, just as graceful as when she first laced up her ballet slippers as a child.

Watch Colby’s Story

March: Isaac’s Moment to Shine

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Meet Isaac, age 11, of Amarillo.

My Defining Moment:

The fingers on my left hand are stuck together except for my thumb. My doctor referred me to TSRHC to get help.

My Moment to Remember:

TSRHC is really nice. Everyone is friendly. The first time there, I saw lots of kids and I knew I wasn’t alone.

My Moment to Shine:

Camp has taught me how to do things I couldn’t do before and I try new things. I feel like we are family away from family.

Give a Patient like Isaac a Moment to Shine: A donation of $500 will contribute toward research that benefits children with hand and upper limb differences. To donate or learn about TSRHC’s Charles E. Seay, Jr. Hand Center and specialized camps, please visit scottishritehospital.org.

TSRHC Patient Delaney Named 94.9 KLTY Student Athlete of the Month

We are excited to announce that Texas Scottish Rite Hospital for Children (TSRHC) patient Delaney is 94.9 KLTY’s Student Athlete of the Month.

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Delaney pictured with her parents.

About Delaney

Age / Grade: 18 / Senior

School: Dallas Christian School

Sport: Soccer

Why She Was Nominated: Delaney is a great example of faith and perseverance. She has been a leg amputee since she was just 10 days old. She pursues every goal with passion and determination.

She has been playing soccer since she was four, and she has cheered since the sixth grade. Last year, she had an additional surgery on her leg and spent two months without her prosthesis. During this time, she performed and danced in her school musical, Annie.

Delaney has spent her summers volunteering at TSRHC, and she plans to study early childhood development at Texas Tech University, with the goal of becoming a Child Life Specialist to help children in the same way she received help.

Congratulations Delaney!

**TSRHC is a sponsor of the KLTY Student Athlete of the Month Program. Listen to the on-air call with Delaney, where they let her know about the honor and shared her story with KLTY listeners.

 

Amputee Ski Trip Spotlight: Natalie, age 14 of Fort Worth

NatalieNatalie, age 14 of Fort Worth, has been a part of the Texas Scottish Rite Hospital for Children (TSRHC) family for most of her life. Born without a fibula bone, she came to TSRHC when she was only 11 months old to have her left foot amputated. But Natalie didn’t let that slow her down. She’s participated in Scottish Rite Hospital’s Learn to Golf programs and by eight years old, this generous girl was organizing lemonade stands and donating the proceeds back to the hospital.

In her free time, Natalie likes sketching and painting, and dreams of becoming an artist one day. She also enjoys playing video games and practicing the piano. Although she’s been skiing before, this is Natalie’s first time on the Amputee Ski Trip and she’s excited to hit the slopes with fellow patients.

About the Annual Amputee Ski Trip

February 2016 will mark the 35th anniversary of the annual Amputee Ski Trip, held each year at the National Sports Center for the Disabled in Winter Park, Colo. Fourteen teenage patients with limb differences are given the opportunity to discover the joy of skiing and snowboarding, while gaining confidence with lifelong friends.

Since the first Amputee Ski Trip in 1981, the community has teamed up with the hospital to make this opportunity possible to patient families. American Airlines has sponsored the trip since 2005. Prior to that, Delta Airlines supported the event for more than 20 years. Multiple other generous supporters from the community, including the Stephen M. Seay Foundation help make this trip possible!

Amputee Ski Trip Spotlight: Jeremiah, age 16 of Dallas

IMG_5682Jeremiah, age 16 of Dallas, Texas, has been a patient at Texas Scottish Rite Hospital for Children (TSRHC) since 2006. Due to the development of osteosarcoma in his bones, he now wears a full leg prosthesis. Jeremiah likes to play basketball and video games with friends outside of school and wants to be an aircraft engineer when he grows up. He is most excited for his first plane ride ever, and he’s also looking forward to learning how to ski!

About the Annual Amputee Ski Trip

February 2016 will mark the 35th anniversary of the annual Amputee Ski Trip, held each year at the National Sports Center for the Disabled in Winter Park, Colo. Fourteen teenage patients with limb differences are given the opportunity to discover the joy of skiing and snowboarding, while gaining confidence with lifelong friends.

Since the first Amputee Ski Trip in 1981, the community has teamed up with the hospital to make this opportunity possible to patient families. American Airlines has sponsored the trip since 2005. Prior to that, Delta Airlines supported the event for more than 20 years. Multiple other generous supporters from the community, including the Stephen M. Seay Foundation help make this trip possible!

Amputee Ski Trip Spotlight: Tatyana, age 15 of Corsicana

1451895417882Tatyana was born with amniotic band syndrome; a condition that caused her to have her right leg amputated when she was just one year old. Luckily, she was in the expert care of Texas Scottish Rite Hospital for Children (TSRHC). Today, Tatyana is a vibrant 15-year-old living in Corsicana. When she is not playing trumpet in her school band, she likes to spend time with her friends. Inspired by the care that she has received at TSRHC, Tatyana has dreams of one day becoming a doctor. She is excited for the opportunity to travel to Colorado to learn how to ski.

About the Annual Amputee Ski Trip

February 2016 will mark the 35th anniversary of the annual Amputee Ski Trip, held each year at the National Sports Center for the Disabled in Winter Park, Colo. Fourteen teenage patients with limb differences are given the opportunity to discover the joy of skiing and snowboarding, while gaining confidence with lifelong friends.

Since the first Amputee Ski Trip in 1981, the community has teamed up with the hospital to make this opportunity possible to patient families. American Airlines has sponsored the trip since 2005. Prior to that, Delta Airlines supported the event for more than 20 years. Multiple other generous supporters from the community, including the Stephen M. Seay Foundation help make this trip possible!