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Dallas Marathon Patient Champion Spotlight: Ayden, age 18 of Denton

Ayden Toleman age 18_23Starting in 2007, several Texas Scottish Rite Hospital for Children (TSRHC) patients offered to help represent the many bright faces treated at the hospital by becoming a patient champion for the Dallas Marathon. The Patient Champion program is a way for the community to participate in race-weekend activities and fundraise on behalf of a patient. We are excited to introduce you to Ayden!

Ayden, age 18, of Denton, Texas, started coming to TSRHC when he was 2 years old for fibular deficiency. Since that time, he has made annual trips to the hospital for x-rays, and in the summer of 2014 Ayden was fitted for the Ilizarov frame for limb lengthening. Ayden’s favorite part of TSRHC is the people. He loves the doctors and Ayden Toleman age 18_11nurses. When the limb lengthening process was complete, Ayden gained two inches in his leg and had a renewed sense of confidence. He finished his treatment and passed his driving test three days before heading off to college.

Currently, Ayden is a freshman at East Texas Baptist University. He is doing an incredible job in school and considering medical school or nursing after completing his undergrad. In recognition of his accomplishments, Ayden is a Legacy Scholarship recipient, a prestigious honor given to current and former patients of TSRHC. Ayden is part of his church choir and recently took a mission trip to Denver. Prior to his operation, he was black belt recommended in Tae Kwon Do, and he plans to complete his belt testing once he has recovered. Ayden is very personable, and those closest to him say he has never met a stranger. He is excited to cheer on the runners at this year’s Dallas Marathon!

We invite you to join our team of fundraisers on behalf of the Patient Champions and all the patients of TSRHC through our Crowdrise page.

Dallas_Marathon_Logo_1971**TSRHC has been the primary beneficiary of the Dallas Marathon since 1997. This year’s event will take place on Sunday, December 13. 


Dallas Marathon Patient Champion Spotlight: Amy, age 17 of Keller

Amy Goode age 17 of Sachse_02Starting in 2007, several Texas Scottish Rite Hospital for Children (TSRHC) patients offered to help represent the many bright faces treated at the hospital by becoming a patient champion for the Dallas Marathon. The Patient Champion program is a way for the community to participate in race-weekend activities and fundraise on behalf of a patient. We are excited to introduce you to Amy!

Amy, age 17, is from Keller, Texas. She has been a patient at Amy Goode age 17 of Sachse_43TSRHC since she was 2 ½ years old. Amy was born without a left arm and a short right arm with two fingers. She also has scoliosis, and when Amy was 8, two TSRHC surgeons placed hardware in her back in order to help straighten her spine; last August, she underwent halo traction. Amy and her doctors have a great relationship, and she knows that they care about her well beyond the conditions for which she is treated.

Amy is an encourager. At TSRHC, she serves as a junior volunteer, where she inspires other patients and visitors to the hospital. She also serves as a volunteer at a Sunday School class for special needs senior citizens. Amy has been participating in speech and debate for three years, and last year she attended a national competition in South Carolina. This year, the subject of her speech is scoliosis. She is also artistic and once designed the T-shirt for a barbeque event benefiting the hospital. Amy is ready to cheer on all of the runners at the Dallas Marathon!

We invite you to join our team of fundraisers on behalf of the Patient Champions and all the patients of TSRHC through our Crowdrise page.

Dallas_Marathon_Logo_1971**TSRHC has been the primary beneficiary of the Dallas Marathon since 1997. This year’s event will take place on Sunday, December 13. 

Happy Campers – Constraint Induced Movement Therapy Camp

For most kids, summer camp is a time to play games, do arts and crafts and have water balloon fights with friends. The same is true for the kids who attend Constraint Induced Movement Therapy (CIMT) camp at Texas Scottish Rite Hospital for Children; but all the fun and games serve a special purpose for very special campers. CIMT camp is a two-week camp for children with Cerebral Palsy. The campers wear a brace on their dominant side in order to force their non-dominant side to do more work. Allowing them to build up strength and stability. They are able to participate in all the fun, traditional aspects of summer camp, all while exercising and conditioning their non-dominant side to be more active.

Dr. Delgado started this camp in 2011 in order for his patients to have a beneficial summer camp experience. Over the years, the camp has tripled in size and referred patients come from all over Texas to participate in this free program.

A special aspect of CIMT camp is the camper’s personal transformations. At the beginning of the two weeks, campers set goals for themselves. These goals range from being able to complete everyday tasks like tying shoes or shooting a basketball to more challenging goals like doing a handstand. At the end of camp, family members, therapists and camp volunteers are invited to watch the campers put on a talent show to demonstrate their new abilities.

By using summer camp as a playful way to build strength and confidence, the campers at CIMT camp are able to go home with new friends, fond memories and most importantly, a stronger self.

For more information on this camp, please contact Linsley.Smith@tsrh.org.

Learning to Fly – the Alex Milner Story

10497454_10152638375847028_4905323787638588013_oAt age 4, TSRHC patient Alexander was adopted from Romania, where he contracted polio that paralyzed his left leg. Shortly after arriving to his new home in the United States, his adoptive parents brought him to TSRHC for proper diagnosis and treatment.

Thanks in part to the hospital that was founded in 1921 to treat children with polio, this state-champion gymnast has not allowed his paralysis to keep him out of the game or the winner’s circle.

See how Alex has learned to overcome the odds and soar so high, some might even say he’s flying, in Learning to Fly – the Alex Milner Story.

Patient Shares Lessons Learned in Moving Speech About “Happiness”

What is happiness? TSRHC patient Anika, age 18, of Lewisville, has been winning awards for her thought provoking take on the subject.

Screen Shot 2015-08-19 at 11.12.41 AMIn the latest triumph for her dramatic speech, “Happy,” the Lewisville High School senior competed in the National Speech and Debate Association’s annual National Tournament that was held in Dallas this summer. Anika was one of only two North Texas students to qualify in the Original Oratory category.

Earlier this year, she delivered the speech, which cites studies and other published observations about happiness, to TSRHC’s orthopedic staff.

Six years ago, Anika moved with her family from Bangladesh “for a better life,” she says, including medical care at TSRHC. She has cerebral palsy and has been treated at the hospital for related orthopedic conditions. The speech begins with Anika’s observation that from birth, the people closest to us “are blessing our futures with happiness and prosperity.” But what shape does that happiness take? She ponders whether what makes us happy is success, money, the latest technology and other “new ways of living easy” or a deeper inner satisfaction.

Anika’s own sense of happiness was shaken by a personal tragedy she outlines in the speech. “Step back, smell the roses, hug a little,” she says in closing. “And remember, it’s never too late to be happy.”


Fore The Love of the Game

At Texas Scottish Rite Hospital for Children a key component of our mission is to treat the whole child, not just their medical condition. Learn to Golf is one of the cornerstones of therapeutic recreation here at the hospital. Ten clinics are held at golf courses around the state, where specially trained golf professionals teach our physically challenged patients the fundamentals of the game, including swinging, safety and etiquette.

More than 1,200 patients have reaped the rehabilitative benefits since the program was launched, including some who have gone on to become members of their school golf teams or gotten involved in their local PGA, LPGA and United States Golf Association junior golf programs.

Besides free instruction, participants who don’t own clubs receive a free set. Kids are also eligible for scholarships that provide funding for involvement in local junior golf programs.

Hospital friends such as Gary Pickle, a local instructor and club maker, have helped patients like Dagem Adehena by making specialized clubs paid for by the hospital’s Learn to Golf program. Since participating in the program, Dagem’s passion for golf has continued to grow. Watch as we follow his journey and see what he’s up to today.


TSRHC Patient Autumn-Rose Encourages Others to Dream Big

After years of hip pain, Autumn-Rose and her mom knew something wasn’t quite right. Through her years of running track at Coronado High School, Autumn-Rose had experienced pain so intense in her hip that sometimes she couldn’t even walk. Doctor after doctor, every answer was different and no one seemed to be able to resolve the issue. Finally, a Lubbock orthopedist diagnosed Autumn-Rose with hip dysplasia and referred her to Texas Scottish Rite Hospital for Children where Chief of Staff Dr. Daniel Sucato performed surgery in January 2012.

ARDream Big

Autumn-Rose did not let this obstacle hold her back. After surgery, she quickly returned to the activities that she loves, like running track, cheering for both her school and a competitive squad, and competing in beauty pageants. She was crowned Miss Limestone County Outstanding Teen and won the Miss South Texas Outstanding Teen pageant.

Autumn-Rose chose to make the most of her days in the spotlight at beauty pageants by empowering other young people. She used her platform, “Dream Big: Overcoming Medical Hardships,” to talk about her experience with hip dysplasia and encourage others to dream big and live fearlessly.

_WAT1972Looking Ahead

Autumn-Rose will attend Sam Houston State University in Huntsville this fall, majoring in forensic chemistry. She has made the cheer squad and will cheer for the Sam Houston Bearkats at their football and basketball games. This summer she took time off from Miss Texas to be a counselor at Ceta Canyon Christian Church Camp.


Inside Your Latest Rite Up Magazine – 2015, Issue 1

Rite Up, the hospital’s quarterly magazine, hit mailboxes this week! We’re giving you a sneak peek of all the great articles featured in this issue. View your copy at home or take a look at the E-Mag version on our website.

Screen Shot 2015-04-24 at 9.42.21 AM

A World of Expertise, Locally Grown

TSRHC has blossomed from its Texas roots into one of the most respected pediatric orthopedic institutions in the world. Learn more in our cover story article.

A Colorful Celebration of Giving

TSRHC unveils a tribute to the generous donors who make the hospital’s mission possible. Read the article about our newly installed Giving Wall in our Donor Spotlight.

Trustee Profile: Making Each Moment Count

Trustee Tom Higgins has been a Texas Mason for nearly 50 years. Learn how he got involved with Masonry and TSRHC in our Trustee Profile.

New Lawson Fellow

Read about Ozan Razi, M.D., of Cyprus, Turkey, who is our current L. Ray Lawson, M.D., International Pediatric Spine Fellow specializing in the research of spinal deformity.

Patients in the Spotlight: Monkey Business Benefits TSRHC

TSRHC patient Emily, age 9 of Forney, Texas, helps raise funds and children’s spirits with her cheerful sock monkeys!

Hospital Happenings

View photos and updates from the following special events:

  • Amputee Ski Trip
  •  2014 Treasure Street
  • Dallas Cowboys Holiday Visit
  • San Angelo Sporting Clay Shoot
  • Cotton Bowl Visit 

You can also request to be mailed a copy of this quarterly magazine. Please call the Public Relations department at (214) 559-7656 or (800) 421-1121, ext. 7656.

TSRHC Hip Patient Families Connect Play Date via Facebook

At TSRHC, we take pride in treating the “whole child” – mind, body and spirit, with ancillary services that include child life programs, individualized physical therapy and in-house specialists in anesthesiology, pharmacy, radiology and psychology. We also have specialized sports and recreational programs that encourage socialization and bonding among peers.

Hip Dysplasia Playgroup_02It’s very often that our patient’s experience at TSRHC will go far beyond medical treatment – we hope you make yourself right at home.

And that was exactly what three mothers who share the common bond of raising toddlers with hip dysplasia did. They found each other via Facebook and created a play date on familiar grounds — in TSRHC’s atrium.

The three patients are all being treated in TSRHC’s Center for Excellence in Hip Disorders and are currently in spica casts, which are body casts that are typically used after surgery to help immobilize the hips and thighs.

One mom said, “It has been wonderful to connect with other families who are experiencing the same journey, and Facebook has been great for that but it can’t compare to meeting people in real life and sharing stories, diagnoses, surgery experiences, spica cast care tips, and other lessons learned. I organized the play date for my daughter so she could see other kids in casts that are like her, and I think I probably got more out of it than she did. These moms are amazing.”

Marlee Cole, Evan Hinojosa, Virigina SorrowIn addition to connecting with other patient families via Facebook, TSRHC’s Family Resource Center has a Peer Support Program that connects TSRHC families who have children with the same medical condition or who have had the same procedure. For more information, please contact our Family Resource Center at (214) 559-7573 or (800) 421-1121, ext. 7573, or email frc@tsrh.org.

Amputee Ski Trip Spotlight: Selam, age 16 of Lewisville, Texas

Selam, age 16 of Lewisville, Texas, is excited to be attending the Amputee Ski Trip for the second time. Selam was born in Ethiopia and suffered burns as a baby, resulting in the need to have her leg amputated. Texas Scottish Rite Hospital for Children has given her the ability to be a kid and participate in normal activities girls her age like to do, such as running. She absolutely loves to read, as well as make new friends, which she looks forward to doing on the trip.

About TSRHC’s Ski Trip:
Since 1981, Texas Scottish Rite Hospital for Children has hosted an Annual Amputee Ski Trip for patients. Fourteen teenage patients, as well as medical staff and chaperones, spend a week at the National Sports Center for the Disabled (NSCD), in Winter Park, Colorado.In a continuing effort to improve the lives of patients, Texas Scottish Rite Hospital for Children recognized that snow skiing is well suited for amputees, and with special equipment, they quickly become competitive and often excel at the sport.

Skiing at the renowned National Sports Center for the Disabled creates a focus for the trip, but the personal growth and challenges the teens overcome are often more life-changing than the actual accomplishment of skiing. The goal of the trip is to foster a sense of self-confidence, discovery and independence for these teens.

Since the first Amputee Ski Trip in 1981, the community has teamed up with the hospital to make this opportunity possible to patient families. American Airlines has sponsored the trip since 2005. Prior to that, Delta Airlines supported the event for more than 20 years. Multiple other generous supporters from the community, including the Stephen M. Seay Foundation help make this trip possible!