Category Archives: News

Kids Help Create Mobility Test for TSRHC

LEE_2703AChildren attending a summer camp at the Dallas Zoo have been helping researchers at TSRHC develop a mobility test to measure the functional ability of young amputees.

The test has been available for adults for a while: the Comprehensive High-level Activity Mobility Predictor (CHAMP) was designed by the military to monitor the progress of veterans with amputations. Researchers at TSRHC have decided to take CHAMP and adjust its parameters to fit younger amputees. To achieve this, they turned to the Dallas Zoo and their summer camp attendees for help.

Children at the camp were put throughAshlynn Johnson; staff Wilshaw Stevens a four-part course, similar to an obstacle course, which timed them as they performed various physical activities. One portion of the test included balancing on one foot with the other foot held over a small cone.

The results of the summer camp kids will be used as a base line for the new CHAMP test for young amputees. That way, a patient’s progress can be compared with others in her own age group, instead of relying on the original test designed for adults.

Since last summer, researchers have gathered the results of 275 campers ages 5 to 14, and they plan on testing hundreds more campers this summer. Ultimately, they hope to have data from 100 kids in each age group from 5 to 18, so the test can be comprehensive.

With the help of these able-bodied camp goers, soon patients at TSRHC will have an effective CHAMP test to measure their progress.

For more information, visit our Movement Science page on our website or view the recent article in the Dallas Morning News. Stay tuned for another news story on Dallas’ CBS11 later this week!

 

 

Two TSRHC Patients Win Prestigious Tommy Tranchin Award

This year’s winners of the Tommy Tranchin award have been announced, and we’re proud to report that two out of the six recipients are TSRHC patients.

The two winners, Alexander Milner and Drew Walton, are young men who embody the heart and spirit of the award—neither one lets a disability get in the way of achieving their dreams.

The Tommy Tranchin Award, sponsored by the Dallas Foundation, was established by Laurie and Rob Tranchin to continue the legacy of their son, Tommy, whose hearing disability didn’t stop him from pursuing a passion for music. The award gives recipients the opportunity to follow their dreams by granting them a stipend (up to $1,500) to be used toward a proposed activity for which they have a passion.

For Alexander Milner, his dream is to one day compete in the Olympics. At age 3, Alexander was WAT_3922stricken with polio, which caused paralysis in his left leg. He initially began learning gymnastics as a form of physical therapy, but he quickly developed a love for the sport.

Alexander is now one of the top gymnasts in the state of Texas and hopes to take his passion all the way to the Olympics. With help from the Tommy Tranchin Award, Alexander will be able to travel to a prestigious gymnastics competition.

Drew Walton has cerebral palsy. When he was an infant, a pediatrician told Drew’s mother that heDrew Walton Tommy Tranchin Award would never learn to walk or talk. As a patient at TSRHC, Drew has exceeded everyone’s expectations—earning straight A’s at Waxahachie High School, where he also manages the track and football teams.

Drew applied for the Tommy Tranchin Award, with help from his teacher, Mr. Galliger. As an award recipient, Drew will receive Dragon software, a laptop computer, printer and microphone, which will give him the ability to further his studies.

Competition for the Tommy Tranchin Award was extremely strong this year, and we’re proud that two of our patients were able to show the determination, commitment and perseverance necessary to win. The TSRHC staff congratulates Alexander and Drew on this tremendous achievement.

Emily’s Story – Chapter Two

5Patients with scoliosis are treated at Texas Scottish Rite Hospital for Children all the time, but TSRHC patient Emily’s case is different. Her scoliosis was already extreme at a very young age, forcing her to make TSHRC like a second home. She became well known around the hospital for her happy spirit and you may remember seeing our very popular first video of her! Now eight years later– we catch up with her to see how she’s doing.

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Since her final scoliosis surgery fused permanent rods to her spine, Emily hasn’t had any problems with her scoliosis. She continues to return to the hospital occasionally for checkups, but her doctor, Dr. Rathjen, has cleared her to participate in some of her favorite activities including: fishing, horseback riding and golfing.

Emily Spaulding age 12 of_ Midland_22Participating in Studies

Emily returns to the hospital periodically for testing in order to help doctors researching early onset scoliosis. Currently, there is no explanation for why she was born with a 55 degree curve in her spine because no one else in her family has had scoliosis. However, the good news is that the doctors have concluded that she will not pass it down to her own kids.

Growing Up Fast

After having 33 surgeries over the course of ten years, Emily had no other choice than to grow up fast.

Watch Emily’s Story – Chapter Two, to catch up with the Midland 13-year-old and hear more about her experience at TSRHC!

TSRHC Patients Compete at UCO Endeavor Games

Post by TSRHC Prosthetist Amanda Brown, CPO, LPO

photo 2 copyJune 5, 2014 kicked off the 15th annual UCO Endeavor Games where athletes gathered from around the world to participate in Paralympic Sporting Events. These games included track and field, swimming, wheelchair basketball, sitting volleyball, archery and many more.  All ages were welcome and among the many participants were seven patients from TSRHC!

The competitive nature of the games was exhilarating and so exciting to watch.  Many of the adult athletes included paralympians who participated in the 2012 London Paralympic Games, as well as veterans from around the country.  The youth athletes included children who dream of photo 3 copybecoming a competitive athlete and love to participate in sporting events. This year’s unique group of participants allowed each athlete to compete against each other and also learn from each other.  The mentoring and encouragement throughout the weekend was remarkable and it was a true representation of the leadership and love for the games.

TSRHC’s seven participating patients represented the hospital with flying colors!  Multiple gold medals were won and many of them participated in numerous events. Two of our patients were noticed by the USA Olympic Committee for both Track and Swimming and five of our kids qualified for Junior Nationals in July.  We even had one of our many star patients win the “Junior Athlete of the Year Award” which was presented at the Athlete Banquet!

photo 19 copyWe are very proud of all of our patients who participated in the Endeavor Games.  Our vision here at the hospital is to always demonstrate the importance of encouraging our patients to pursue their dreams and goals. The Endeavor Games is an opportunity for our patients to compete and build confidence by surrounding themselves with an amazing support system.

Swinging Into Action: TSRHC’s Learn to Golf Program

Saturday, June 7, TSRHC held a Learn to Golf clinic in Denison, Texas. The Learn to Golf Program is a way for TSRHC patients to receive therapeutic treatment while also having fun learning to golf with other patients who share the same passion. Learn to Golf was launched in 1998 by the hospital’s therapeutic recreation department and was built upon the National Amputee Golf Association’s First Swing program.

_STU0009 copy“It’s to introduce our patients who have physical disabilities to the game of golf. So we go around the state and have ten clinics in different locations,” said TSRHC director of therapeutic recreation Dana Dempsey.

Taught by specially trained golf professionals, the patients with physical challenges rotate between three different groups and learn to hit long distances on the driving range, chip onto the green and putt on the green to make their best attempt to get the ball into the hole.

Playing golf has proved to be effective in the treatment for TSRHC patients.

“We’ve had a couple of [participants] report that they haven’t had to have surgery now that they’ve been practicing golf and being involved in golf. So it has both a therapeutic value and then that for just the socialization and fun, feeling good and being able to do something well,” said Dempsey.

After the patients swung through the event, lunch is served and awards are presented. During this time the Junior Golfers and their parents have the chance to get to know one another.

_STU0054 copyJunior Golfers receive specialized training from golf and allied health care professionals, a rules book and starter golf equipment. In addition, the hospital may assist patients in finding golf instructors in his or her area who provide further golf lessons and programs.

Watch a news clip from the recent Learn to Golf Clinic from Texoma’s KXII Local News Station.

The next golf clinic will be held June 14 in Lewisville at Lake Park Golf Course. For more information about Learn to Golf, please visit http://www.tsrhc.org/Learn-to-Golf.

Sculpture Artist Hosts Workshop with TSRHC Patients

Starting June 13, Alan Barnes Fine Art is curating their first local artist sculpture exhibition. Showcasing only local Dallas artists, the exhibition entitled “exposition de sculpture locale” benefits TSRHC.

The show will be hosted by Lottie Minick, a metal, mosaic and fused glass artist. She curates and participates in the “Friends of Lottie Sculpture garden at the State Fair of Texas”, is a former Texas Sculpture Association and Art Professionals of Texas board member and participates in the White Rock Lake Artists’ Studio Tour and White Rock East Garden Tour & Artisans.

Artist Lottie Minick; patient Scarlett RoseTo kick off the exhibition, Lottie hosted an art workshop with some of the patients at TSRHC by doing a mosaic piece, which will also be for sale in the show.

This visit helped patients take their minds off their medical treatment and also served as a way to let them show off their artistic talents. “These kids want to be like any other kid,” said TSRHC Senior Communications Officer Manny Mendoza. “Projects like this go a long way to doing that.”

Exposition de sculpture locale is a great opportunity to meet, buy and start a relationship with a local Texas artist. The show will run from June 13th 2014 through July 14th 2014, with a Champagne Reception on June 13th from 6 – 8:30 p.m.

LEE_7107ALocation: Alan Barnes Fine Art, 3906 Lemmon Avenue, Suite 222, Dallas, TX, 75219 (located directly above La Madeleine). For more information, visit www.alanbarnesfineart.com

Read more about the patient visit in a news article from the Dallas Morning News.

Crayon Club Kicks Off the Year with Annual Crawfish Boil

Are you looking for a way to get involved with Texas Scottish Rite Hospital for Children? We invite you to learn more through our young professionals group, Crayon Club!

Crayon Club was established to unite individuals dedicated to improving the lives of children. Together, through volunteerism, education and philanthropy, Crayon Club supports the mission of TSRHC.

Upcoming Events

2014 Crawfish Boil invitation copyCrawfish Boil: Crayon Club will be kicking off the year with the second annual Crawfish Boil! The event will take place on Thursday, May 22 from 7 – 9 p.m. at the Green Elephant. Tickets can be purchased online for $15. All you can eat crawfish compliments of Dodie’s Restaurant, special guest speaker and live music from the Rusty Brothers.

 

2014 Invitation copyCharacter Breakfast: A magical meet-and-greet experience complete with superheroes, team mascots and princesses. Breakfast, an autograph session, door prizes, face painting and other activities will be included. This event will take place Saturday, June 28 at 9 a.m. at TSRHC. Tickets can be purchased online for: $15/child  $25/adult  $150/table for 8. 

 

Summer Colors_no tsrhcSummer Colors: Summer Colors, now in its sixth year, was an idea born out of passion for raising awareness about TSRHC; while also giving the Dallas community exposure to local up and coming artists. Jenny Grumbles, Loren Koziol, and Jill and Dupree Scovell founded Summer Colors in 2009 and have continued to grow the event over the past four years. The celebration takes place in the form of a silent art auction and a cocktail reception, featuring original pieces by local artists. Involving the community is important to the founders and sponsorship opportunities are available. This event will take place on Thursday, August 31 at TSRHC. Tickets can be purchased online for $25 (or $30 at the door). For additional information on featured artists and photos from previous years, view our Summer Colors website.

Volunteerism

Crayon Club offers unique volunteer opportunities, including participating in events around the community, such as the Dallas Marathon, TSRHC’s Farm and Ranch Day, KidSwing and assisting with patient activities in the hospital’s Dr. Bob and Jean Smith Child Life Center

Philanthropy

Crayon Club provides opportunities to create friendships, network and connect with others interested in making a positive impact in their community. To be a part of Crayon Club, individuals give a suggested annual gift of $100, while couples give $150. These gifts help underwrite patient care, research, medical equipment and/or building renovations at TSRHC. Benefits of Crayon Club also include invitations to special events and other activities.

Be a Part of Crayon Club Today!

Crayon Club Logo

The Power of Young Hope: inspiration from a youthful amputee

Emmy Raney

Emmy participated in the KidSwing Golf Tournament to give back to TSRHC.

Sometimes, it’s the adolescents around us that show us how to truly live a successful and happy life.  No matter what barriers they face, young people have a way of showing us how to overcome.  This is certainly true of Emmy, a young amputee who doesn’t let anything get in her way.

Finding Hope at TSRHC

Ever since she was a baby, Emmy struggled with problems in her left foot and leg due to nerve damage caused by spina bifida, a developmental disability.  But by the time she reached second grade, Emmy’s leg just couldn’t keep up with her spunky and active lifestyle.  So, she and her family decided to have it amputated at Texas Scottish Rite Hospital for Children in Dallas.

Since then, her amazing progress has astonished everyone around her, from the many doctors she worked with at TSRHC to her very own friends and family.  Emmy doesn’t see her new prosthetic leg as a crutch – rather, it’s her ticket to a happy and active life.

Now ready to enter middle school, Emmy continues to impress everyone with her can-do attitude and her hope for all the possibilities that lie ahead.  Not only was she just accepted to be a cheerleader for next year, but she also will be a member of the track team when school starts again in the fall.

Running Forward

To prove her grit, Emmy recently participated in her school’s 5K race.  Her older brothers and brother-in-law also signed up, to help her out along the way.  But, before the race began, Emmy thanked them for their offer and assured them that she could do this on her own. She just wanted to run with her friends, like any other middle school girl.

And that’s exactly what she did.  Emmy crossed the finish line, just a little more than half way through the pack of 400 race participants with a smile on her face and light in her eyes.  To her, it didn’t seem like a big deal.  But to everyone watching, she was a huge inspiration.

After the race, Emmy was presented with a plaque with a quote from Babe Ruth that couldn’t sum up her attitude any better: “You can’t beat a person who never quits.”

No doubt, Emmy will continue to conquer any challenges that she faces.  From track to cheerleading to golf, she plans to do it all.

Accessible Luxury Event Benefiting Texas Scottish Rite Hospital

TSRHCAccessible Luxury is a fashion-focused event benefiting Texas Scottish Rite Hospital for Children. This year’s event took place on Friday, April 11th, and once again, it was a success that will be remembered throughout the coming year!

Fashion, Food & Fun!

With themed rooms from the Maserati Man Cave to the McLaren Moonlight Room, guests were able to explore a variety of fashions, cars and local cuisine in support of the hospital and its care for Texas children.

Event chairs Pam Nurenberg, M.D., and David H. Ewalt, M.D. (pictured right), did an excellent job hosting this special evening at Park Place Premiere Collection in Dallas. Highland Park Village retailers such as Anne Fontaine, Beretta, Cole Haan, Five and Ten, Jimmy Choo, Lela Rose and Trina Turk were featured in the fashion show.

This year’s event also featured topnotch cuisine from local restaurants including Lombardi Family Concepts (Lounge 31, Taverna, Toulouse), Truluck’s, Sprinkles Cupcakes, Mr Mesero/ Mesero Miguel, Village Burger Bar, The Slow Bone, San Salvaje by Stephen Pyles and more!

Special thanks to everyone who supported this successful event! Visit our Facebook page for additional photos and to follow along.

TSRHC to Partner with Rotary Club of Dallas to host 13th Annual Bike Rodeo & Child Safety Day

Abby Brewer - ptThe Rotary Club of Dallas will partner with Texas Scottish Rite Hospital for Children to host the 13th annual Rotary Club of Dallas Bike Rodeo & Child Safety Day this Saturday, April 12 at 10 a.m.

The Bike Rodeo & Child Safety Day gives children from around the Dallas community the opportunity to learn about safety in a fun, family environment. The Bike Rodeo & Child Safety Day is free of charge to all participants, so everyone is invited to come and join in the fun!

For those who are not able to make the event, here are some tips on Bike Safety:

Spring and Summer means kids are out playing everywhere. Running, jumping, biking, skateboarding – you name it. So here are some safety measures Texas Scottish Rite Hospital for Children suggests you take before the fun begins.

First of all, make sure everyone in the family who rides a bike has a helmet. The importance of this is obvious when you learn that 50,000 bikers suffer serious head injuries each year. And the fact is bicycle helmets could have prevented the vast number of these injuries. When buying a helmet, check that it meets safety standards by looking for an ANSI or SNELL approved sticker on the helmet or box.

If skateboarding or in-line skating is your kid’s preference, then they’ll need additional protective gear like knee pads, elbow pads and wrist pads, along with safety helmets. Remind children to stay on sidewalks and to obey traffic signals and signs. Reiterate how important it is to look both ways before crossing the street. Likewise, remind friends to be on the lookout for children on bikes and skates crossing the road. If everyone works together, we can share the road, avoid unnecessary injuries and enjoy a safe, fun-filled spring and summer.