Author Archives: admin

Kids Help Create Mobility Test for TSRHC

LEE_2703AChildren attending a summer camp at the Dallas Zoo have been helping researchers at TSRHC develop a mobility test to measure the functional ability of young amputees.

The test has been available for adults for a while: the Comprehensive High-level Activity Mobility Predictor (CHAMP) was designed by the military to monitor the progress of veterans with amputations. Researchers at TSRHC have decided to take CHAMP and adjust its parameters to fit younger amputees. To achieve this, they turned to the Dallas Zoo and their summer camp attendees for help.

Children at the camp were put throughAshlynn Johnson; staff Wilshaw Stevens a four-part course, similar to an obstacle course, which timed them as they performed various physical activities. One portion of the test included balancing on one foot with the other foot held over a small cone.

The results of the summer camp kids will be used as a base line for the new CHAMP test for young amputees. That way, a patient’s progress can be compared with others in her own age group, instead of relying on the original test designed for adults.

Since last summer, researchers have gathered the results of 275 campers ages 5 to 14, and they plan on testing hundreds more campers this summer. Ultimately, they hope to have data from 100 kids in each age group from 5 to 18, so the test can be comprehensive.

With the help of these able-bodied camp goers, soon patients at TSRHC will have an effective CHAMP test to measure their progress.

For more information, visit our Movement Science page on our website or view the recent article in the Dallas Morning News. Stay tuned for another news story on Dallas’ CBS11 later this week!

 

 

Participate in ALON’s “Load the Code” to help give back to TSRHC!

Want a chance to win a new Ford F-150 4×4 pickup truck?

Alon_LTC_CharityIcon_240x400TSRHC is so excited to be one of the charities chosen for ALON’s “Load the Code” program this summer! Through this program, TSRHC will have the chance to win part of the $100,000 that ALON is donating to local charities. By following these easy steps to vote for TSRHC, you will be entered to win free gas and a new FORD F-150 4X4 truck….and the best part is that it won’t cost you a thing!

1. Grab the App
: Just go to the Apple App Store on your iPhone or Google Play on your Android phone and download the free ALON “Load the Code” app. Launch the app, set up a user name and password and you are ready to play.

app_store_icon google_play_icon

2. Scan to Play: 
Visit any participating ALON store and go inside to the special “Load the Code” poster or easel card with the QR code. Launch you ALON app and scan the code. Every time you scan you will be entered into the contest. The more you scan the better your odds of winning! You can enter once a day. You can also earn badges for scanning in different stores or at different times of day. You can also randomly “Instant Win” ALON YouCash for free gas! No purchase necessary.

3. Do Some Good: 
After you scan a code you can vote for TSRHC! This will increase our chances of winning a part of the $100,000 that ALON is donating to charity.

Good luck and thank you for participating in this fun summer program that benefits TSRHC!

** “Load the Code” runs now through September 30, 2014. Watch the YouTube video or visit www.myalon.com/loadthecode for more details.

Two TSRHC Patients Win Prestigious Tommy Tranchin Award

This year’s winners of the Tommy Tranchin award have been announced, and we’re proud to report that two out of the six recipients are TSRHC patients.

The two winners, Alexander Milner and Drew Walton, are young men who embody the heart and spirit of the award—neither one lets a disability get in the way of achieving their dreams.

The Tommy Tranchin Award, sponsored by the Dallas Foundation, was established by Laurie and Rob Tranchin to continue the legacy of their son, Tommy, whose hearing disability didn’t stop him from pursuing a passion for music. The award gives recipients the opportunity to follow their dreams by granting them a stipend (up to $1,500) to be used toward a proposed activity for which they have a passion.

For Alexander Milner, his dream is to one day compete in the Olympics. At age 3, Alexander was WAT_3922stricken with polio, which caused paralysis in his left leg. He initially began learning gymnastics as a form of physical therapy, but he quickly developed a love for the sport.

Alexander is now one of the top gymnasts in the state of Texas and hopes to take his passion all the way to the Olympics. With help from the Tommy Tranchin Award, Alexander will be able to travel to a prestigious gymnastics competition.

Drew Walton has cerebral palsy. When he was an infant, a pediatrician told Drew’s mother that heDrew Walton Tommy Tranchin Award would never learn to walk or talk. As a patient at TSRHC, Drew has exceeded everyone’s expectations—earning straight A’s at Waxahachie High School, where he also manages the track and football teams.

Drew applied for the Tommy Tranchin Award, with help from his teacher, Mr. Galliger. As an award recipient, Drew will receive Dragon software, a laptop computer, printer and microphone, which will give him the ability to further his studies.

Competition for the Tommy Tranchin Award was extremely strong this year, and we’re proud that two of our patients were able to show the determination, commitment and perseverance necessary to win. The TSRHC staff congratulates Alexander and Drew on this tremendous achievement.

Crayon Club to Host Character Breakfast

TSRHC’s Crayon Club is hosting the second annual magical meet-and-greet experience complete with more than 20 favorite children’s characters (ie: super heroes, team mascots and princesses) on Saturday, June 28 from 9 a.m. – 11 a.m. The event will feature breakfast, an autograph session, silent auction, face painting and other activities.

Set Up

Tickets are:
Child Ticket: $15
Adult Ticket: $25
Table (for 8): $150
Note: Admission is free for children under two. 

Crayon Club was established to unite individuals dedicated to improving the lives of children. Together, through volunteerism, education and philanthropy, Crayon Club supports the mission ofTexas Scottish Rite Hospital for Children.

PURCHASE TICKETS

Join Crayon Club on Facebook to read more about upcoming fundraising and volunteer opportunities and see photos from recent events!

Super heros; Coen Carpenter as Capt. America; Nickolas Garcia; Kingston EdwardsReese Pritchett, Ellie Pritchett, Lexie Pritchett, Snow White

Talk of the Town Benefiting TSRHC

The Rays of Light Foundation will be hosting The Talk of the Town fundraising event benefiting Texas Scottish Rite Hospital for Children, along with Texas Ranger’s Baseball Foundation, The Dallas Stars Foundation, The Alzheimer’s Association – Greater Dallas Chapter and Temple Emanu-El Foundation.

In this first of its kind event, friends of TSRHC can have the chance to bid on a chance to join legendary broadcasters Chuck Cooperstein, Eric Nadal, Brad Sham and Ralph Strangis on Wednesday, July 16 at Kirby’s Prime Steakhouse in Southlake as they share unforgettable stories in an intimate gathering benefiting their favorite local charities.

Dinner with the legendary broadcasters includes:

  • Kirby’s Prime Steakhouse in Southlake dinner with wine pairing prepared by Executive Chef Daniel Nemec and staff
  • John Rhadigan from FOX sports will emcee the evening
  • Live Jazz Piano – Art Riddles of Art Riddles Trio
  • During dessert, the four announcers will share video clips and stories of their favorite “calls”
  • Complimentary Hand Rolled Cigars by House of Cigars
  • Silent auction including: an all-inclusive visit to “Shark Tank” with Mark Cuban in Los Angeles, California, a day with the announcer of choice, tickets to various sporting events and autographed memorabilia

TalkOfTheTown_FB_link_2_2 copyThe event is a unique fundraising opportunity that will bring together the voices of the four major Dallas sports franchises in a casual setting for an evening of fine food and drink and stellar stories of Dallas sports from the men who have called, collectively, three Super Bowls, the NBA Championship, the Stanley Cup and two World Series appearances of the Cowboys, Mavericks, Stars and Rangers.

All proceeds from seats purchased at Chuck Cooperstein’s table will be donated to Texas Scottish Rite Hospital for Children, along with items up for bid at a silent auction.

Bidding for seats starts at a minimum bid of $200 for a seat. Online bidding ends at 4 p.m. on Thursday, July 11.

BID NOW

Emily’s Story – Chapter Two

5Patients with scoliosis are treated at Texas Scottish Rite Hospital for Children all the time, but TSRHC patient Emily’s case is different. Her scoliosis was already extreme at a very young age, forcing her to make TSHRC like a second home. She became well known around the hospital for her happy spirit and you may remember seeing our very popular first video of her! Now eight years later– we catch up with her to see how she’s doing.

12

Since her final scoliosis surgery fused permanent rods to her spine, Emily hasn’t had any problems with her scoliosis. She continues to return to the hospital occasionally for checkups, but her doctor, Dr. Rathjen, has cleared her to participate in some of her favorite activities including: fishing, horseback riding and golfing.

Emily Spaulding age 12 of_ Midland_22Participating in Studies

Emily returns to the hospital periodically for testing in order to help doctors researching early onset scoliosis. Currently, there is no explanation for why she was born with a 55 degree curve in her spine because no one else in her family has had scoliosis. However, the good news is that the doctors have concluded that she will not pass it down to her own kids.

Growing Up Fast

After having 33 surgeries over the course of ten years, Emily had no other choice than to grow up fast.

Watch Emily’s Story – Chapter Two, to catch up with the Midland 13-year-old and hear more about her experience at TSRHC!

TSRHC Patients Compete at UCO Endeavor Games

Post by TSRHC Prosthetist Amanda Brown, CPO, LPO

photo 2 copyJune 5, 2014 kicked off the 15th annual UCO Endeavor Games where athletes gathered from around the world to participate in Paralympic Sporting Events. These games included track and field, swimming, wheelchair basketball, sitting volleyball, archery and many more.  All ages were welcome and among the many participants were seven patients from TSRHC!

The competitive nature of the games was exhilarating and so exciting to watch.  Many of the adult athletes included paralympians who participated in the 2012 London Paralympic Games, as well as veterans from around the country.  The youth athletes included children who dream of photo 3 copybecoming a competitive athlete and love to participate in sporting events. This year’s unique group of participants allowed each athlete to compete against each other and also learn from each other.  The mentoring and encouragement throughout the weekend was remarkable and it was a true representation of the leadership and love for the games.

TSRHC’s seven participating patients represented the hospital with flying colors!  Multiple gold medals were won and many of them participated in numerous events. Two of our patients were noticed by the USA Olympic Committee for both Track and Swimming and five of our kids qualified for Junior Nationals in July.  We even had one of our many star patients win the “Junior Athlete of the Year Award” which was presented at the Athlete Banquet!

photo 19 copyWe are very proud of all of our patients who participated in the Endeavor Games.  Our vision here at the hospital is to always demonstrate the importance of encouraging our patients to pursue their dreams and goals. The Endeavor Games is an opportunity for our patients to compete and build confidence by surrounding themselves with an amazing support system.

Swinging Into Action: TSRHC’s Learn to Golf Program

Saturday, June 7, TSRHC held a Learn to Golf clinic in Denison, Texas. The Learn to Golf Program is a way for TSRHC patients to receive therapeutic treatment while also having fun learning to golf with other patients who share the same passion. Learn to Golf was launched in 1998 by the hospital’s therapeutic recreation department and was built upon the National Amputee Golf Association’s First Swing program.

_STU0009 copy“It’s to introduce our patients who have physical disabilities to the game of golf. So we go around the state and have ten clinics in different locations,” said TSRHC director of therapeutic recreation Dana Dempsey.

Taught by specially trained golf professionals, the patients with physical challenges rotate between three different groups and learn to hit long distances on the driving range, chip onto the green and putt on the green to make their best attempt to get the ball into the hole.

Playing golf has proved to be effective in the treatment for TSRHC patients.

“We’ve had a couple of [participants] report that they haven’t had to have surgery now that they’ve been practicing golf and being involved in golf. So it has both a therapeutic value and then that for just the socialization and fun, feeling good and being able to do something well,” said Dempsey.

After the patients swung through the event, lunch is served and awards are presented. During this time the Junior Golfers and their parents have the chance to get to know one another.

_STU0054 copyJunior Golfers receive specialized training from golf and allied health care professionals, a rules book and starter golf equipment. In addition, the hospital may assist patients in finding golf instructors in his or her area who provide further golf lessons and programs.

Watch a news clip from the recent Learn to Golf Clinic from Texoma’s KXII Local News Station.

The next golf clinic will be held June 14 in Lewisville at Lake Park Golf Course. For more information about Learn to Golf, please visit http://www.tsrhc.org/Learn-to-Golf.

Sculpture Artist Hosts Workshop with TSRHC Patients

Starting June 13, Alan Barnes Fine Art is curating their first local artist sculpture exhibition. Showcasing only local Dallas artists, the exhibition entitled “exposition de sculpture locale” benefits TSRHC.

The show will be hosted by Lottie Minick, a metal, mosaic and fused glass artist. She curates and participates in the “Friends of Lottie Sculpture garden at the State Fair of Texas”, is a former Texas Sculpture Association and Art Professionals of Texas board member and participates in the White Rock Lake Artists’ Studio Tour and White Rock East Garden Tour & Artisans.

Artist Lottie Minick; patient Scarlett RoseTo kick off the exhibition, Lottie hosted an art workshop with some of the patients at TSRHC by doing a mosaic piece, which will also be for sale in the show.

This visit helped patients take their minds off their medical treatment and also served as a way to let them show off their artistic talents. “These kids want to be like any other kid,” said TSRHC Senior Communications Officer Manny Mendoza. “Projects like this go a long way to doing that.”

Exposition de sculpture locale is a great opportunity to meet, buy and start a relationship with a local Texas artist. The show will run from June 13th 2014 through July 14th 2014, with a Champagne Reception on June 13th from 6 – 8:30 p.m.

LEE_7107ALocation: Alan Barnes Fine Art, 3906 Lemmon Avenue, Suite 222, Dallas, TX, 75219 (located directly above La Madeleine). For more information, visit www.alanbarnesfineart.com

Read more about the patient visit in a news article from the Dallas Morning News.

Achieving His Goal: TSRHC Patient Scored Trip to Super Bowl

At age 4, TSRHC patient Tyler and his twin brother, Sterling, met former Dallas Cowboys defensive end DeMarcus Ware at a public appearance near their home.

The boy’s mother, Cindy, distinctly remembers Tyler, who was born missing the lower portion of his right arm, asking Ware for more than an autograph that day.

“Tyler said, ‘Mr. Ware, with my one arm, do you think I could ever play football?’” she recalls. “And he told Tyler, ‘If you put your mind to it, you can do anything you want.’”

Tyler knew exactly what he wanted — to play football.

Photo courtesy of Dallas Morning News

Photo courtesy of Dallas Morning News

Today the determined 13-year-old is a highly respected member of his middle school football team, for which he plays linebacker and right guard. “He’s not out there for people to say, ‘Hey, look at the guy with one hand playing football,’” the team’s head coach, Scott Starnes, says. “He’s trying to win.” Tyler’s trophy-laden bookcase indicates that he has done exactly that.

At his mother’s urging, he entered an NFL-sponsored video contest to tell his football story for a chance to win tickets to Super Bowl XLVIII. From a field of thousands, the NFL chose 10 finalists, filmed documentary-style films of each and posted them online for viewers to vote for their favorite. Tickets would be awarded to the top five contestants.

The film featuring Tyler was one of the winners, securing votes from around the world. He, along with his parents and his brother, received an all-expense paid trip to New York City for a week of activities leading up to seeing the big game live from a luxury suite at MetLife Stadium.

Shortly after the family’s return to Texas, Frisco Mayor Maher Maso even declared a day in Tyler’s honor.

“The support of my family and my community has been amazing,” Tyler says.

His sports journey is just beginning. Tyler is also part of an elite baseball team and plans to take up basketball.

“I would tell anybody not to give up on their dream, no matter what the obstacles are,” Tyler says. “Because if you practice hard enough, you will get way better at what you’re trying to achieve.”

See Tyler’s inspirational, winning video: www.togetherwemakefootball.com

**This article was featured in our 2014 Volume 1 Rite Up Magazine