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Run to Inspire; Former TSRHC Patient with Cerebral Palsy Runs in Dallas Marathon

Every runner has his or her own reasons for running a marathon; many run to prove to themselves that they can simply do it. Others run to win.

For former TSRHC patient Michael Burns, he ran to inspire.

In an interview with WFAA ABC News Channel 8 in Dallas, Burns talked about his motivations for competing in the 2014 MetroPCS Dallas Marathon.

As a child Burns was diagnosed with cerebral palsy, and he spent 13 years as a patient of Texas Scottish Rite Hospital for Children under the care of Dr. J.A. “Tony” Herring, Chief of Staff Emeritus. TSRHC is the primary beneficiary of the Dallas Marathon, and to Burns’ it is the main reason why he participated.

“If I can give hope to other people, to other kids…that’s why I push.”

Burns began his journey as a marathon runner 7 years ago, when he took up running as a way to relieve stress brought on by the mortgage crisis. Now at age 36, this is his marathon.

“I was always curious about what it would feel like to do a half marathon, and then a half led to my full marathon, 26.2 mile race in one day,” Burns told WFAA Channel 8.

Burns is currently working with Dr. Lezlie Maloy of Spring Valley Spine and Sports care, who is helping him as he prepares to run. Burns has experienced several stress fractures running in the past, and Maloy is helping him with his biomechanics so that he can participate in the Dallas Marathon.

“I know what I have; I know that I’m very fortunate,” Burns said, “because I know with other patients with cerebral palsy, they’re not as fortunate; some are in wheelchairs, some are on crutches.”

TSRHC has been the primary beneficiary of the Dallas Marathon since 1997, receiving more than $3.5 million in donations.

“Everybody’s got their differences,” Dr. Herring said, “and what you do is make the best of what you’ve got. [Burns has] done a great job of doing that.”

2014 MetroPCS® Dallas Marathon Patient Champion Spotlight: Meet Max of Arlington

In addition to the junior race director, the MetroPCS® Dallas Marathon® features 5 patient champions from TSRHC. The patient champion program is a way for the community to participate in race-weekend activities and fundraise on behalf of a patient.

Max Paredes age 9 of Arlington_074

Max, age 9, of Arlington, Texas was adopted from China when he was three years old. When adopting Max, his family knew that he had some limb differences in both his foot and his hands, so it made sense for them to take him to TSRHC. Max is treated in both, TSRHC’s Prosthetics department as well as the Charles E. Seay, Jr. Hand Center. One of Max’s biggest passions is art. He has won artist of the year twice at Ditto Elementary School and he loves designing his legs! In addition, Max recently started playing soccer and is doing great. He is the epitome of perseverance, his parents never hear the words “I can’t do this” come out of his mouth because Max is always determined to find a way to do everything.  Max can’t wait to help cheer on the runners at this year’s Dallas Marathon!

Dallas Cowboys Holiday Visit

Dwayne Harris, Marissa Regalado - ptOn Tuesday, December 9, select Dallas Cowboys players and cheerleaders came to Texas Scottish Rite Hospital for Children (TSRHC) for their annual holiday visit.  Members of the team have been visiting TSRHC since 1996.

Patients and their families were treated to Dallas Cowboys goodies and each had a chance to get autographs from the football players and cheerleaders.

View media coverage of the event:
Dallas Morning News
Fort Worth Star Telegram
Dallas Cowboys Website

 

 

Veronica Lind, Ava Coker, Melissa Lynn, Brynleee Coker, Lacey Annalea Kyle Stamey - pt, Tony Romo

 

2014 MetroPCS® Dallas Marathon Patient Champion Spotlight: Meet Ellie of Flower Mound

In addition to the junior race director, the MetroPCS® Dallas Marathon® features 5 patient champions from TSRHC. The patient champion program is a way for the community to participate in race-weekend activities and fundraise on behalf of a patient.

Ellie Sharp age 16 of Flower Mound_03Ellie, of Flower Mound, Texas has been a patient at Texas Scottish Rite Hospital for Children since she was 11 years old. She receives treatment at the hospital for scoliosis—curvature of the spine—and had surgery at TSRHC to correct the curve in July 2013. Thanks to TSRHC, today, her back is almost straight! Ellie is 16 years old and attends Flower Mound High School, where she is a vital member of the golf team. She is also a PGA Junior Tours participant, very active in her church and is a small group leader at Fellowship of Christian Athletes (FCA). Ellie has always had a positive outlook during her time as a patient at TSRHC. All of the trips to the hospital became mother/daughter days for her and her mom.

Ellie is extremely outgoing and loves to talk and make new friends. She hopes to attend Ole Miss in the future and pursue a degree and career in marketing or public relations. Ellie has loved every experience she has had at TSRHC, especially the volunteers and the popcorn, and is excited to represent the hospital as a 2014 Patient Champion!

2014 Holiday Tree Lighting Ceremony

Kitty Kay - TSRHC Crayon Club

 

 

 

 

 

 

Twas the 2nd of December and all through Scottish Rite

Not a tree was decorated, not even one light;

Trees were placed through the hospital with care,

In hopes that volunteers and friends soon would be there…

Christmas cheer filled the halls of Texas Scottish Rite Hospital for Children Tuesday night as friends and volunteers came together for the annual tree lighting ceremony. The smell of popcorn wafted through the Atrium as Dallas area organizations, businesses and community members gathered to help decorate the hospital for the holidays. The 18 foot grand tree, located in the hospital Atrium, was ceremoniously lit by TSRHC patient Emily Hough and Steve Love (President and CEO of the Dallas Fort Worth Hospital Council) to kick off the festivities.  After everyone joined in a joyous rendition of “We Wish You a Merry Christmas” the volunteers and the holiday decorators dispersed throughout the hospital to decorate over 50 trees.

Holiday music played by the Town North Concert Band put the whole hospital in the spirit while the trees were lovingly decorated.  Quick as a flash, the hospital was almost instantaneously transformed in a manner of minutes. Over 50 trees across the entire campus were uniquely decorated for their holiday debut. Some trees feature traditional holiday décor while others feature more humorous themes like surfing Santa. Each of the trees is as uniquely beautiful as the children of this hospital.

After every last ornament and ribbon was perfectly in place, everyone sat down to a holiday feast of sweet potatoes, roast beef and brie sandwiches and gingerbread men. It was truly a time of good tidings and great joy for all at Texas Scottish Rite Hospital for Children.

 

Violeta’s Story: From the White House to TSRHC

Violeta Hernandez_16

With Don Cummings, Director of Prosthetics

Violeta visited the White House in 2004. That year, she also became a patient at TSRHC, referred to the hospital by George W. Bush’s secretary of education, Rod Paige, who had met the 8-year-old Violeta during an official trip to Mexico two years earlier.

Violeta was born without a right leg and had a poorly functioning prosthetic. She came to TSRHC to be fitted for a new prosthetic and began making annual visits for adjustments or new legs as she grew. Now 20, Violeta is a scholarship college student back home. Recently she had her last TSRHC appointment, documented in this video, Violeta’s Story.

2014 MetroPCS® Dallas Marathon Patient Champion Spotlight: Meet Elizabeth, age 11, of Arlington

In addition to the junior race director, the MetroPCS® Dallas Marathon® features 5 patient champions from TSRHC. The patient champion program is a way for the community to participate in race-weekend activities and fundraise on behalf of a patient.

Elizabeth Spoon age 11 of Arlington_34Elizabeth, age 11, of Arlington, Texas has been a patient at TSRHC’s Luke Waites Center for Dyslexia and Learning Disorders for a year and a half. Elizabeth had been homeschooled and her mom knew that something was wrong, so the pediatrician sent them to TSRHC. After going through testing, she was diagnosed with dyslexia and, with much excitement, was soon admitted to The Luke Waites Center.The Luke Waites Center for Dyslexia and Learning Disorders is named for Dr. Luke Waites, who in 1965 established a program at TSRHC to identify and treat children with learning disorders, primarily dyslexia. The World Federation of Neurology met at TSRHC in 1968 and formulated the first consensus definition of developmental dyslexia. With great progress in the dyslexia program at the hospital, Elizabeth’s parents now have to tell her to put her books away at night or else she will never go to bed! Outside of school, Elizabeth is an accomplished hockey player. Her future goals are to attend Yale University, because they have a great hockey team and an outstanding dyslexia center. Elizabeth is looking forward to representing the hospital as a Patient Champion at the 2014 Dallas Marathon!

Elizabeth was featured in the Dallas Morning News on Tuesday, November 25. Read article online here!

2014 MetroPCS® Dallas Marathon Patient Champion Spotlight: Meet Dimitri, age 10, of Plano

In addition to the junior race director, the MetroPCS® Dallas Marathon® features 5 patient champions from TSRHC. The patient champion program is a way for the community to participate in race-weekend activities and fundraise on behalf of a patient.

Dimitri Jubenville age 10 of Plano_18Dimitri, age 10, of Plano, Texas was adopted from Russia three years ago. Since arriving in America, Dimitri has been treated for prosthetic needs at TSRHC under the care of TSRHC’s Chief of Staff Emeritus, Tony Herring, M.D., and TSRHC’s renowned Prosthetics department. Although he wears two prostheses—one fully mechanical leg and a partial prosthetic—that doesn’t stop Dimitri from doing all of the sports he loves! He is a great swimmer, gymnast, and he enjoys riding his hand bicycle where he is able to make his upper body strong. Dimitri is a very outgoing young boy who loves to make friends everywhere he goes. His favorite thing to do while at TSRHC is playing with other patients in the Child Life Playroom and he cannot wait to support TSRHC and the Dallas Marathon as a 2014 Patient Champion.

Don’t Forget to Order Your TSRHC Holiday Items!

TSRHC’s holiday greeting cards, “Happy Holidays” gift card and ornament are now available for ordering!

Holiday Greeting Cards

SnowmanSpread holiday cheer to your friends, family, clients and colleagues by sending holiday cards featuring art by TSRHC patients. Pricing is $20 per package, which includes 20 cards and 22 envelopes.

Order by phone: (214) 559-8323 or (800) 421-1121, ext. 8323; or by mail: download this PDF and mail it back to TSRHC.

“Happy Holidays” Gift Card

P3_Holiday Donor Card 2014 copyThis year, give a gift that helps give children back their childhood. Honor your friends and family with a donation to TSRHC in their name. The hospital will acknowledge your donation by sending a “Happy Holidays” gift card to your list of recipients. Please visit tsrhc.org/give, print the gift card order form and mail it to the address listed on the form, or call (214) 559-8322 or (800) 421-1121, ext. 8322.

TSRHC Holiday Ornament

P3_Ornament copyCommemorate 2014 with a fun, festive ornament from TSRHC. This year’s ornament boasts a new, 3-D design representing an iconic hospital image – TSRHC’s legendary popcorn!

Purchase your annual collectible ornament for $16.95 online here!

 

 

2014 MetroPCS® Dallas Marathon Patient Champion Spotlight: Meet Alana, age 10, of Dallas

In addition to the junior race director, the MetroPCS® Dallas Marathon® features 5 patient champions from TSRHC. The patient champion program is a way for the community to participate in race-weekend activities and fundraise on behalf of a patient.

Alana Bitting age 9 of Dallas_47Alana, of Dallas, Texas started coming to TSRHC only about six months ago after suffering injuries from a major car accident when her family was hit by a drunk driver. At just 9 years old, she was pinned in the car and after having to be cut out of the vehicle she suffered very severe injuries, including pelvic and other multiple fractures, a dislocated hip and nerve damage. After being in ICU for a week and a half, she was referred to TSRHC to receive the care she needed to fully recover from this traumatic event. Alana wore an external Ilizarov to treat the multiple fractures in her leg bones. Physicians at TSRHC developed the TRUE/LOKExternal Fixation System, a modification of Ilizarov’s frame, to treat patients with a variety of limb length discrepancies, including lengthening or reshaping bones. The TRUE/LOK system requires a less complicated surgical procedure and allows for greater patient comfort during the lengthening process. The patented TRUE/LOK system is now used around the world and continues to be improved through the efforts of the Center for Excellence in Limb Lengthening and Reconstruction at TSRHC. Alana’s favorite part about the hospital is all of the friendly nurses and the Child Life playroom, where she can use her outgoing personality to play with all of the other patients. She is very thankful to TSRHC for helping her through a very traumatic experience in her life!